
Time: December 10, 2010 at 6pm to December 19, 2010 at 7pm
Location: The Ferreira's
Street: 460 Wilmington Way
City/Town: Vacaville, CA 95687
Phone: (707) 718-5890
Event Type: raffle
Organized By: Crystal Ferreira
Latest Activity: Dec 13, 2010
We are honored to finally be hosting a fundraising raffle for The Foundation. Please see our attached flyer and email me at fourferreiras@att.net if you are interested in purchasing a ticket (or more). All checks are to be made out to the foundation and mailed to Christopher Ferreira 460 Wilmington Way Vacaville, CA 95687. We look forward to pulling your name on the 18th! Good Luck!!!
Comment
Comment by Bill Biermann on December 13, 2010 at 6:05pm All,
If you are afraid to take the plunge and conduct your own Fundraiser, then perhaps you can help out with someone elses! Please contact Crystal for more detailss
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.

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