aHUS Conference for Patients and Families- a UK First
Event Details
Time: June 11, 2011 from 10:30am to 4:30pm
Location: Newcastle upon Tyne - UK, Center for Life,
Website or Map: http://www.aHUS.org.uk
Event Type: conference
Organized By: Dr. Tim Goodship
Latest Activity: Jun 13, 2011
Event Description
Join Dr. Tim Goodship at Newcastle upon Tyne for the UK's 1st Atypical HUS Conference on June 11, 2011. Details at www.aHUS.org.uk .
The Center for Life (A Centre for World-Class Science) is the conference site, where from 10.30 to 16.30 conference attendees will learn about the disease and discuss aHUS issues. Topics at this Saturday conference at Newcastle upon Tyne include: aHUS treatments, transplants, Soliris, and a disease registry.
Registration and attendance are free, book online now at https://bookings.benchcom.co.uk/ei/getdemo.ei?id=14&s=_0TG0U46ZT.
The meeting organiser is Professor Tim Goodship (t.h.j.goodship@ncl.ac.uk).
Please note: The 3rd International Conference of HUS, MPGN, and Related Diseases to be held at Innsbruck, Austria event (May 22-24th) will be host to such aHUS investigators as Dr. Marina Noris, Dr. Peter Zipfel, Dr. Jeff Saland, Dr. Richard Smith (U of Iowa), and Dr. Christoph Licht (volunteer for this site's Doc to Doc Registry).
See http://hus-online.at/download/Program.pdf for details.
The Innsbruck conference is a great option for physicians and aHUS investigators to share technical specifics about aHUS issues.
Comment Wall
Comment
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Comment by maria vicenta carratala rios on June 13, 2011 at 4:55am -
I have been in The ahus Conference with Jose and my husband. I have learned about the complement system , all of kinds mutations and I met with doctors, scientific and families. Only my family from Spain, but I know that I am not alone in this disease. I have cried to listen the stories from the patients. Now there is solutions for ahus patients but there is not associations or foundations.
to meet . I come back Spain happy to assist this Conference and wait in the future go to the next.
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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Did you know...
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It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
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