Time: February 22, 2013 at 7pm to February 23, 2013 at 8:30am
Location: Hilton Suites Atlanta Perimeter
Street: 6120 Peachtree Dunwoody Rd.
City/Town: Atlanta, GA 30328
Phone: 203-744-0100, ext. 226
Event Type: meeting
Organized By: Allie Freitas
Latest Activity: Jan 27
2013 Regional Support Meetings
for Patients with aHUS
Atlanta - February 23rd
(New Jersey - April 27th)
The National Organization for Rare Disorders invites
patients and caregivers/families affected by Atypical
Hemolytic Uremic Syndrome (aHUS) to participate in a
special event to meet other patients and speak with a
This meeting will provide an opportunity for you to come
together in a small group, and gain the encouragement
and hope that comes from meeting face-to-face with
other aHUS patients.
Everyone will be able to share personal experiences
with each other, gain a better understanding of this rare
disease, and help others cope with the effects of their
NORD will support the efforts of the aHUS community
by sharing accurate and useful information, and will
explore ideas for future assistance.
Friday, February 22nd - Reception 7PM-9PM
Saturday, February 23rd
8:30 AM – 9:00 AM Breakfast
9:00 AM – 9:30 AM Introduction and Meeting Overview
9:30 AM – 11:30 AM Support Meeting with aHUS Expert
11:30 AM – 12:00 PM Review of Available Resources
12:00 PM – 1:15 PM Lunch
1:15 PM – 2:45 PM Breakout Sessions
2:45 PM – 3:00 PM Break
3:00 PM – 3:30 PM Meeting Summary
Larry Greenbaum, MD, PhD
Director, Division of Pediatric Nephrology,
Chief, Pediatric Nephrology, Emory-Children’s Center
Professor of Pediatrics,
Emory University School of Medicine, Atlanta, GA
Hilton Suites Atlanta Perimeter
6120 Peachtree Dunwoody Rd.
Atlanta, GA 30328
Please RSVP by February 12 2013
203-744-0100, ext. 226
This is a free event.
Hotel accommodations (one night stay) provided if requested.
Please do not hesitate to contact us for questions concerning this event.
To help defray the cost of travel expenses there will be a small stipend
mailed to each patient after the meeting.