
Time: September 18, 2011 from 10am to 2pm
Location: Kids Gone Wild
Street: 3777 Vacavalley Pkwy.
City/Town: Vacaville
Website or Map: http://maps.google.com/maps?q…
Phone: (707) 718-5890
Event Type: blood, drive
Organized By: Crystal Ferreira
Latest Activity: Sep 19, 2011
Together with Blood Centers of the Pacific we will host the first of (hopefully) many blood drives in honor of not just Christopher, but all who have ever needed or will be needing blood products. If you are in our area, we would love to have you stop by. Together we'll save lives!
Comment
Comment by Linda Burke on September 13, 2011 at 8:46pm WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.

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