The Atypical HUS Foundation

Oct. 24-26th, 2014 - aHUS Conference at the U of Iowa

Event Details

Oct. 24-26th, 2014 -  aHUS Conference at the U of Iowa

Time: October 24, 2014 at 4:30pm to October 26, 2014 at 10:30am
Location: University of Iowa, Carver Medical School
Website or Map: http://www.medicine.uiowa.edu…
Event Type: ahus, family, conference
Organized By: U of Iowa Physicians/Researchers, MORL staff, The Talbots, The Biermanns, Linda Burke
Latest Activity: Oct 15, 2014

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Event Description

The University of Iowa and the Foundation for Children with Atypical HUS announce the 2014 aHUS Family Conference to be held at the University of Iowa on October 24-26, 2014.

JOIN US for the only aHUS conference in the United States to offer multiple medical presentations from 6 aHUS experts and covering high-interest  topics such as mutations, disease pathology, the complement cascade, transplant issues and MORE! 

Click here to REGISTER for the Iowa aHUS Family Medical Conference   Iowa’s registration deadline is August 29th.   Questions?   Email:  Amy-Weaver@uiowa.edu

The Foundation for Children with Atypical HUS is pleased to support your attendance by providing:  FREE hotel lodging* for both Friday & Saturday night, a $100. travel stipend per family, and MORE.   Click here to reserve your  room for Oct. 24 and 25th at the Sheraton Iowa City Hotel.

 

Schedule of Events

*Friday, October 24th -  4 to 6 pm    Meet & Greet     FREE

NORD hosts a Meet & Greet for patients, offering patients and caregivers the opportunity to connect with one another and NORD. 

*Friday, October 24th -  6 pm    Welcome Dinner     FREE

Your hosts - the Foundation for Children with Atypical HUS.

*Saturday, October 25th  - 8am to 4pm  Family Medical Conference     FREE

Links to the full agenda and to conference registration are at http://www.medicine.uiowa.edu/morl/events/

MORL tours and genetic screening will be available onsite. FMI please contact Amy Weaver at amy-weaver@uiowa.edu .

 

While this conference is geared toward adults, we understand that some families wish/need to bring children.  Activities will be offered in separate room staffed by ChildLife specialists. 

 *Saturday, October 25th - 6pm       Family/Patient/Caregiver Dinner     FREE

Your hosts - The Foundation for Children with Atypical HUS.

*Sunday, October 25th -  7:30am to 10:30am   Wrap-Up Breakfast       FREE

 Join other aHUS patients, caregivers, and family members at the Breakfast Wrap-Up Meeting hosted by Global GenesReserve your free Sunday Buffet breakfast spot at http://globalgenes.org/ahus-registration/

Click for MORE info

 

 

 

 

Comment Wall

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Comment by Margriet Eygenraam on September 18, 2014 at 11:34pm

I am so excited to attend this conference. It sounds like a weekend full of information.  Looking forward to meeting others that have gone thru the same journey as we have.  It will be an awesome weekend.

Comment by Linda Burke on March 5, 2014 at 1:35pm

Hi Joshua,

The University of Iowa is planning the conference, so as soon as they release an agenda it will be posted here.  Phyllis Talbot will be creating info on events surrounding the Oct. 25th medical conference, and she'll provide details as soon as they are arranged, too.

Comment by Joshua Willis on March 5, 2014 at 10:20am
Could u email me more information on this event. We are very new to this disease and everything it brings so definitely want to go to the event to better understand all the ins and outs.

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