Ryan's Hope 2010
Event Details
Time: September 25, 2010 from 9am to 6pm
Location: Barker Brook Golf Course
Event Type: golf, tournament
Organized By: Sharon Hinderliter
Latest Activity: Aug 17, 2010
Event Description
This is our annual fundraiser for the Foundation for Children with Atypical HUS. We have had great success in the past and have raised an average of $10,000 a year for the foundation. Golf is $65 per person, captain & crew teams. Price includes 18 holes, cart, and chicken bbq. Hole sponsors are $50 each.
Comment Wall
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Comment by Linda Burke on August 17, 2010 at 5:13pm -
Wow Heather! It's great that your family, friends, and community are coming together again this year at this fun golf tournament to help raise research $$ for The Foundation for Children with Atypical HUS! This is such an amazing annual fundraiser....... we wish you good weather and a super turn out!
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "About aHUS" tab at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
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It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
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