The Atypical HUS Foundation

Sept 20-21st, NORD hosts ORLANDO aHUS Meeting

Event Details

Sept 20-21st, NORD hosts ORLANDO aHUS Meeting

Time: September 20, 2013 at 7pm to September 21, 2013 at 3pm
Location: Renaissance Sea World
City/Town: ORLANDO Florida
Event Type: ahus, regional, meeting
Organized By: NORD
Latest Activity: Sep 10, 2013

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Event Description

     NORD's 3rd aHUS Regional Meeting will be held on Sept. 20-21st at the Renaissance Sea World in Orlando, Florida.  There will be an September 20th dinner (7 to 9 pm) for attendees that Friday evening with an opportunity to connect with other aHUS patients and their families. 

     The highlight of the full day Saturday Sept. 21st meeting (8:30 to 3 pm) will be an extended presentation and question time with Dr. Robert B. Kaplan, MD, a physician experienced in aHUS diagnosis, treatment, and genetics.  Dr Kaplan is a key faculty member within the Division of Hematology and Cellular Therapy of The Western Pennsylvania-Allegheny Health System and the Director of the Hemostasis-Thrombosis Laboratory at the Western Pennsylvania Hospital in Pittsburg PA.

 The Foundation for Children with Atypical HUS was honored to include Dr. Kaplan's "Dispelling Common Myths in aHUS" as a cornerstone of our website tab 'ADULTS with aHUS'.  

SEE THE FULL PROGRAM HERE, click the pdf file to open NORD's Orlando Program - aHUS.pdf

 

     Melissa Hearn will present on behalf of the Foundation for Children with Atypical HUS,  PLAN to ATTEND, and contact Allie Freitas at NORD to register for this free event for aHUS patients, families, and caregivers.  A travel stipend may be available to defray your expenses - call Allie at NORD for details! 

 

Alexandra W. Freitas
afreitas@rarediseases.org

Office: 203.744.0100 ext. 226
 
National Organization for Rare Disorders, Inc.
55 Kenosia Avenue
Danbury, CT 06810
Cell: 203.501.3690
Office: 203.744.0100 ext. 226
Fax: 203.798.7413

www.rarediseases.org
 
SEE THE FULL PROGRAM HERE, click the pdf file to open NORD's Orlando Program - aHUS.pdf
 
 

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