
Time: March 20, 2010 from 6pm to 11pm
Location: The Carpenter's Hall
Street: Hampton
City/Town: St. Louis, MO
Phone: 636 942 4425
Event Type: trivia/auctions
Organized By: The Biermann and Pallme Family and voluteers from St. Pius HS, DeSmet HS, Vianney HS, Fox and Seckmn HS, St.
Latest Activity: Mar 1, 2010
Ten rounds of trivial pursuit with zany entertainment and audience participation. Silent auction closes after the sixth round of trivia. Oral auction following the ninth round. Silent auction consists of usually over 100 baskets/large items. Oral auction cosists of signed sports items, a vacation and other large ticket items.
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WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "About aHUS" tab at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.

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