The Atypical HUS Foundation

Jodi Kayler's Discussions (45)

Discussions Replied To (44) Replies Latest Activity

"Hi Janet, I hope she is doing better. I just wanted to make a note that It is common…"

Jodi Kayler replied Aug 29, 2011 to Getting help from US experts to out of country (Japan) hospitals

6 Aug 29, 2011
Reply by Janet Punty

"Hi, We are on the West Coast (Washington). UCLA is one of the leading children's hos…"

Jodi Kayler replied Aug 9, 2010 to Treatment

27 Nov 1, 2010
Reply by Cheryl Biermann

"Soliris was approved with new insurance without a hitch. Took only 24-hours this tim…"

Jodi Kayler replied Jul 15, 2010 to Soliris

293 Sep 18, 2013
Reply by Barbara Farcher

"So our corporate insurance policy has changed hands again. We have to get Soliris ap…"

Jodi Kayler replied Jul 13, 2010 to Soliris

293 Sep 18, 2013
Reply by Barbara Farcher

"I just want to say my heartaches thinking about how stressful both your (Stacey &…"

Jodi Kayler replied Jun 12, 2010 to Dual Transplant - Kidney/Liver

23 Jun 13, 2010
Reply by Stacey

"Hi Stacey, I haven't followed your story very close but I just noticed your post and…"

Jodi Kayler replied Jun 12, 2010 to Dual Transplant - Kidney/Liver

23 Jun 13, 2010
Reply by Stacey

"Just a quick update on Coen: Coen, now 7, has been on Soliris for 14 months and life…"

Jodi Kayler replied Jun 9, 2010 to Soliris

293 Sep 18, 2013
Reply by Barbara Farcher

"Skyler's new protocol is interesting for all of us. We have reduced Coen to once a m…"

Jodi Kayler replied May 19, 2010 to Soliris

293 Sep 18, 2013
Reply by Barbara Farcher

"Yay! For little Chloe! I'm so happy that Soliris was approved and is working wonders…"

Jodi Kayler replied Apr 11, 2010 to Soliris

293 Sep 18, 2013
Reply by Barbara Farcher

"Great news Kerri. I think this disease has forced us all to learn patience like I ne…"

Jodi Kayler replied Mar 23, 2010 to Soliris

293 Sep 18, 2013
Reply by Barbara Farcher

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