The Atypical HUS Foundation

Phyllis Ann Talbot's Discussions (43)

Discussions Replied To (42) Replies Latest Activity

"Awesome Len! "

Phyllis Ann Talbot replied Oct 29, 2014 to ADULTS with aHUS

191 May 15, 2017
Reply by Donnan Oyler

"Thanks for starting Kamal!  Great idea!  Haven't 'spoken' with you in awhile but kno…"

Phyllis Ann Talbot replied Oct 27, 2014 to aHUS India

9 Nov 21, 2014
Reply by Kamal D Shah

"Len - SO great to meet you in person - not just via SKYPE ;-)!  And thanks for the a…"

Phyllis Ann Talbot replied Oct 27, 2014 to ADULTS with aHUS

191 May 15, 2017
Reply by Donnan Oyler

"Hi Kristen - they haven't discussed the kidney transplant with Soliris therapy optio…"

Phyllis Ann Talbot replied Apr 16, 2014 to Complement Factor I

6 Jun 3, 2014
Reply by Kristen Bruner

"Hi Jennifer - ughhh we also had major issues with our school getting Hyde's 504 in p…"

Phyllis Ann Talbot replied Mar 27, 2014 to Got part of genetic testing back

4 Mar 31, 2014
Reply by Cheryl Biermann

"Hey everyone  sorry to 'horn in' on your adult discussion ;-)  But Len, I read yours…"

Phyllis Ann Talbot replied Apr 11, 2013 to ADULTS with aHUS

191 May 15, 2017
Reply by Donnan Oyler

"Kerry - Hi - you will get through this!  We really do all know what you are going th…"

Phyllis Ann Talbot replied Feb 20, 2013 to New to aHUS & petrified :(

14 Feb 21, 2013
Reply by debbie thelwell

"ha ha ha - thanks Len!  we wanted to keep it consistent  -one Bill to another ;-). …"

Phyllis Ann Talbot replied Jan 30, 2013 to FOUNDATION DIRECTOR ANNOUNCEMENT

3 Jan 30, 2013
Reply by Phyllis Ann Talbot

"We have a port for Hyde and LOVE it - it allows me to do his infusions at home mysel…"

Phyllis Ann Talbot replied Dec 28, 2012 to Port or no Port....

9 Jan 1, 2013
Reply by Donna Kolp

"Hey - yes!  I would push for it - ours was awhile to get the home health set up (the…"

Phyllis Ann Talbot replied Dec 13, 2012 to home health infusions for Soliris

25 Feb 13, 2013
Reply by Cheryl Biermann

RSS

Badge

Loading…

© 2018   Created by Deborah Lewis.   Powered by

Badges  |  Report an Issue  |  Terms of Service