The Atypical HUS Foundation

Svetlana Finley's Discussions (69)

Discussions Replied To (67) Replies Latest Activity

"Hi, Sandra My daughter was diagnosed when she was 4 with no diarrhea, then few days…"

Svetlana Finley replied Jul 13, 2014 to Hus or aHus?

11 Sep 8, 2014
Reply by Kris Carrender

"HI Jennifer, it looks like he has MPC and unknown part is still not been unidentifie…"

Svetlana Finley replied May 3, 2014 to Got Genetic Testing Back

4 May 30, 2014
Reply by Cheryl Biermann

"when u check BP make sure he is calm and not right after running, also depends on so…"

Svetlana Finley replied Apr 26, 2014 to Blood Pressure

2 Apr 26, 2014
Reply by Svetlana Finley

"Annie, Anna had the the same issue, it seems better now. We usually would give her T…"

Svetlana Finley replied Mar 9, 2014 to Bone pain

7 Mar 26, 2014
Reply by Jennifer Christopher

"HI, when we were looking in to that option we been told that Anna can't do sport if…"

Svetlana Finley replied Feb 25, 2014 to Yay.....

3 Feb 25, 2014
Reply by Cheryl Biermann

"You can contact Alexion they will check it out and will try ti figure everything for…"

Svetlana Finley replied Dec 14, 2013 to United Medical

1 Dec 14, 2013
Reply by Svetlana Finley

"Hi Kerry, welcome to our site,  we had to wait 2 weeks todo testing for our daughter…"

Svetlana Finley replied Feb 20, 2013 to New to aHUS & petrified :(

14 Feb 21, 2013
Reply by debbie thelwell

"We are not getting port for our dd as she does sports and very active, also i thing…"

Svetlana Finley replied Dec 27, 2012 to Port or no Port....

9 Jan 1, 2013
Reply by Donna Kolp

"My daughter is 14yr and she gets Soliris every other week, that is what on Soliris p…"

Svetlana Finley replied Dec 3, 2012 to Soliris

293 Sep 18, 2013
Reply by Barbara Farcher

"Anna just finished her 4th treatment.  before first treatment her labs: PLT 245 Hemo…"

Svetlana Finley replied May 18, 2012 to Soliris

293 Sep 18, 2013
Reply by Barbara Farcher




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