The Foundation for Children with Atypical HUS

Business Cards
Attached is a template for aHUS Calling Cards (Business Cards) that can
be used to help guide others to the Atypical HUS website and the aHUS
Foundation. These cards can be distributed to your family, friends, potential
donors and medical professionals as you see fit. The file is a PDF, and the
cards are layed-out as 8-up on an 8.5x11.  All you have to do is print on Letter size card stock and trim.


Directions for printing:
1. If you are looking for a large supply of business cards, I recommend
emailing the PDF to your local digital printing company (like Kinkos). Ask them
to print on a white card stock, 1-sided, and trim on the crop marks.

2. If you only need a few, these can be printed on a home printer on card
stock. Use a ruler and exacto blade (or paper cutter) to trim on the crop
marks. 

 

aHUS Informational Handout

Attached is a Summary Handout about the Basics of Atypical Hemolytic Uremic Syndrome. This was created to create awareness about the disease and the foundation. It is perfect for friends, family, and medical professionals who may not be familiar with the disease. Feel free to print and distribute to who you see fit.

If you have any questionse, please let me know.
Thanks, Jodi

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Jodi, I want you to know how much we all appreciate your work on this! I'm going to my sisters this week to print some letterhead and the cards! I can't tell you how many times I write down the web addresses for people and know that they INTEND to take a look, but loose the scrap of paper. A business card is carefully saved and preserved and therefore eventually used! Great news!
Great job Jody. Your time and efforts in this and the Parents Perspective are an invaluable service to the entire aHUS community!!! Thank you.
I'm glad that folks like the new "aHUS Business Card"! Jodi's creativity has produced a beautiful and informative piece that we hope you'll find useful to distribute to family, friends, teachers and others wishing to know more about atypical HUS and its' effects upon patients and their families.Did you pick up on the meaning behind the card's design elements? I wanted to include the colored bubbles to echo our website's cute 'bubble faces' in the graphics, recognizing both the children living with strength and courage and honoring the cherished lives lost to aHUS. Jodi created a rising dragonfly, choosing this symbol of the touching 'Waterbug and the Dragonfly' story as a reminder of beauty and love, as well as the power of life. A butterfly might appear to be fragile but has great inner strength, so it's quite appropriate that this symbol for renewed life is often used as a symbol for organ donation. I love how Jodi perched the butterfly on the bubbles, since I wanted to include the butterfly to honor all the wonderful organ donors who cherished life so much that they unselfishly wished to 'Donate Life' and renew/transform/enrich the lives of others.
Jodi, thanks for all your efforts and talent to make this card truly attractive, informational, and symbolic of the aHUS journey!
Jodi, what a great flyer, thank you. My community is having a Benefit Dinner for my daughter in November and they have asked me to produce some information about aHUS. This will work wonderfully! Thanks again!

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WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!

The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.

Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.


NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.

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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.

 

Did you know...

CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
  
• • • • • • • • • • • •
  
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
  
more factoids...

Help us fight the battle

Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.

  

  
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com


Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.



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