This article outlines the protocol for treatment after an initial diagnosis of aHUS, and would be useful to a parent or physician newly experiencing questions about the therapies available. This article was published before the trials of Soliris were available. The article is more useful for listing the research facilities and registries in Europe (no mention is made of American organizations).
Please note that the article mentions the possibility of a connection between the ADAMTS13 mutation and TTP.
Tags: protocol, plasmapheresis, ADAMTS13, TTP, registries, research