low blood preasure

[maria vicenta carratala rios]

Hi members:

 

During three years my little son have had a high blood preasure controled with minoxidil, trandate, captopril and adalar retard. sudennly one day his blood preasure has begining to low, Is it a miracle ? My son do not have any kidney because doctorsa takenn off as a consequence the high blood preasure suffer to have ahus. Anybody has success the same case like my son? My family are so happy to see Jose Monfort with a control preasure but sometimes I am scared to low blood because i do not sometimes what can I do. His heart is better since this change. He is in hemodyalisis on line since 6 month ago, and three years in another kind of hemodyalisis. Maybe is it on line the change in the blood preasure?

 

thanks

 

[Cheryl Biermann]

Nathan's blood pressure improved after changing from peritoneal dialysis to hemo also. He really hasn't had blood pressures low enough to worry me, but I do know some of the other kids, (not aHUS), on hemo have trouble with low blood pressures. Sometimes this is a result of having too much fluid removed...when Nathan's blood pressure gets below 106 systolic, he feels really bad when he's being dialyzed and a few hours after. But if it goes low, even around 100 systolic when we are at home, you know like the off day, he's fine. It's confusing sometimes.

[Deborah Deffenbaugh]

Alyssa's blood pressure was so high when she first came down with A-HUS that she went into seizures from it. She was on about 12 different medications back then (1 1/2 years ago). The docs were considering removing her kidneys to try to control the blood pressure. Now she is down to 2-3 meds and her blood pressure is often low. I don't know why this is either but my guess is that the kidney is exerting less and less control of the blood pressure due to increased thickening, etc. of the organ and thrombosis. Just a layman's guess however but I am not viewing it as a good thing even though it has made our life easier for now.

[Lisa Barker]

My bp was extremly high when i first started HD but over time it has come down. I am now only on one blood pressure tablet when i used to be on four. Im not sure if its as my body has got used to the machine, i do dialyse a little more now so that has helped and i probably drink a little less which definatley helps. Hope your sons BP stays stable

Hugs

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