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Permalink Reply by Linda Burke on October 25, 2010 at 11:03pm
Permalink Reply by Linda Burke on November 3, 2010 at 11:27am
Permalink Reply by Linda Burke on March 12, 2012 at 12:23pm As Hyde's biopsy date approaches (3/13), we ask God once again to bring comfort and good news to the Talbot family. They have been stalwart and compassionate people, Lord - driven not only to be advocates for Hyde's aHUS issues, but to extend their loving arms and volunteer efforts to all who deal with health issues, through their organization of the 'Hike for Hyde' which benefits their local hospital as well as aHUS research.
Experienced doctors, skilled nurses, and the combined expertise of technicians - may they combine into a triad that is blessed by you, Lord, as they seek answers and provide care to their patients. As Hyde is supported by his loving family and friends, may You wrap them all in love, illuminate the situation with knowledge, and provide positive outcomes for Hyde's continued improvements in health. AMEN
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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