Soliris side effects
Happy New Year everyone! I have a question about soliris...I'm wondering if anyone has seen a significant change in hair loss. My sister started with soliris in the beginning of November and a couple of weeks ago we noticed she looses a lot of hair. Any help or feedback would be greatly appreciated. Thanks!
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Replies to This Discussion
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Permalink Reply by Phyllis Ann Talbot on -
hmmmm - my son Hyde has been on Soliris since Jan of last year and I can't say that I've noticed any effects to his hair? Sorry! not sure if your sister is on any other meds that could cause this?
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Permalink Reply by Jessica Rios on -
Well, she's also on Lovenox...I guess I just wanted to be sure. Her doctor told her it's probably stress but I wanted to hear about other children that are on Soliris. Thank you for your response!
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Permalink Reply by Cheryl Biermann on -
My child is transplant with Soliris, he is not experiencing any hair loss, but I do know that dialysis patients sometimes suffer from this hair loss because of mal-absorbtion or lack of copper and other elctrolites in their systems. Sometimes this can be a side effect of drugs as well.
I myself am experiencing some severe changes in my sight after my donating a kidney to my son. The doctor was curious to see if I had taken any steroids. So, I would say, if your suspicion is the Soliris, to look at the PNH sight as well, and see if this has been a concern with them. They are the people who have been on this drug for long term, so are the most likely to have had side effects.
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