The Atypical HUS Foundation

Forum Discussions (138)

Discussions Replies Latest Activity


Jodi Kayler is our go to person for the cards for sale project. Due to the short amount of time, she has decided to go with blank cards des…

Started by Cheryl Biermann in Uncategorized

15 Sep 21, 2009
Reply by Svetlana Finley


i was just curious if anyone else has had a problem gettting social security for their kiddo they say that my daughter is disabled but not…

Started by lisa ann peterson in Uncategorized

6 Sep 17, 2009
Reply by KaTrina Slaughter

Leg cramps

I saw some post has that their child has leg cramps issues, and wondering what u do about it. Anna gets them almost every week and they are…

Started by Svetlana Finley in Uncategorized

3 Sep 13, 2009
Reply by Cheryl Biermann


Hi all--- hope everyone is having a peaceful holiday weekend. As for us, we are having problems with Aiden's blood pressure. It has been on…

Started by Christy in Uncategorized

11 Sep 10, 2009
Reply by Donna Kolp


I am a 34 yr old transplant patient. I had postpardum HUS/TTP. I was on dialysis for 3 years (hemo an i also tried pd for a bit). If there…

Started by Desiree L Mayne in Uncategorized

9 Aug 17, 2009
Reply by Desiree L Mayne

20 years worth of dialysis, is it worth it? oh yes it is!

Hi everyone, I was diagnosed with AHUS when I was 11months old and have been on dialysis, my entire life, except for when I received a tran…

Started by Jessica Olivia Frysz in Uncategorized

0 Aug 10, 2009

Growth Hormone

Aiden's nephrologist wants to get him started on Growth Hormone injections soon and we are now just waiting on the insurance approval to ge…

Started by Christy in Uncategorized

5 Aug 3, 2009
Reply by Jessica Olivia Frysz

TRALI - Precautionary Note about Infusion of Blood Products

"Male donor plasma ONLY" was marked on both Hunter and Skyler's medical records. Hunter had at least one, probably two, instances of TRALI…

Started by Linda Burke in Uncategorized

4 Jun 29, 2009
Reply by Linda Burke




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