The Atypical HUS Foundation

FUNDRAISERS

 SEASON OF GIVING

During this season of thanksgiving and reflection, the Atypical HUS Foundation appreciates your generosity and support for aHUS families. In fall 2014, through an anonymous donor, we appreciated having an anonymous donor sponsor a dollar for dollar matching donation for funds raised through December 31, 2014. 

In 2015, The Atypical HUS Foundation has continued to provide aHUS outreach and education efforts and we want to support patients and families in the coming years as well but this will take effort from all of us. Below are several ideas you are welcome to use. Attached are a set of guidelines we ask everyone to follow when hosting a fundraiser. Should you have any questions, please contact Crystal Ferreira at fourferreiras@att.net .

 

aHUS Shirts: Wear your aHUS t-shirt from the Iowa family conference, and contact us if you'd like to purchase one

  Holiday/Christmas Cookies: Many of us already plan to bake for the holidays. We may have friends and neighbors who don't plan or want to. Why not offer them the opportunity to enjoy the tastes of the seasons with your holiday bake sales to benefit The Atypical HUS Foundation!

 

  Make the Grade: Considering the stress our younger patients endure, let's highlight how bright they shine through the darkest of times. Students can ask for pledges for their grades at any point prior to the end of their quarter/trimester and collect donations once they receive their report card. Consider pledges of $2 for an "A", $1 for a "B", etc.                                                               

                                                                                                     

    Change It: We all want to make a change in the somebody's life. Why not help contribute to our research by donating your spare change in a coin jar. Coin jars (decorated mason jars with a slit in the top) can be set out at businesses around your hometown or you could ask neighbors to contribute their spare change for a week. Who knows, some might be inclined to continue doing it.

 

  Movie Night: team up with your local movie theatre to sell tickets to a popular release on a designated date. Typically profits would accumulate through either a discounted cost that allows you to sell it for face value and profit the difference or a percentage returned (similar to a dine and donate).

 

  Christmas Ornaments: With a little creativity you can purchase, decorate, and sell ornaments that resemble the foundations bubble logo. These can be clear ornaments or styrofoam spheres purchased online or at a local craft store.

 

  Piece of the Puzzle: Donors "purchase" a puzzle piece for a set amount ($1, $5, etc.) and write their name or message on the back. Once all the pieces are sold, the puzzle is assembled and framed between 2 pieces of glass so that both the puzzle picture and the names/messages can be viewed. The puzzle becomes a keepsake that can be displayed at future events or conferences. When selecting a puzzle, consider one with larger pieces as it will be easier to fit names and messages.

 

Spaghetti Feed: Do you have a banquet facility available and volunteers willing to help you host a spaghetti feed? Maybe your local Mason, Elks, or Rotary club will sponsor the food. Sell tickets in advance to help with the planning.

 

  New Year's Eve Celebration: Not only is the new year a reason to celebrate, but so are all the foundation events currently in the planning stages for 2016! Consider an evening with dinner or hors d'oeuvres and entertainment. If you start now, you may even be able to gather some donations for a silent auction!

Click here for a list of Fundraising Details 

Here are other great WAYS TO HELP raise funds for aHUS research:

iGive.com
Want to help your favorite cause at no extra cost to you?  Join iGive.com and make a difference every time you shop for the items you need or want.  Over 1500 stores are listed and donate an average of 3% back.  Remember to shop through iGive this holiday season!

Employer Matching
Does your employer participate in a matching program?  Often, employers implement a program that allows the employees to select a charitable organization of their choice to which they donate a designated amount from their paycheck, pre-tax.  The employees' contributions are then matched by their employer, doubling the donation to the organization.  For more information or to find out if your employer has implemented a matching program, contact your HR Department today!


Support aHUS Research!

The Atypical HUS Foundation is a 501c3 nonprofit organization

in compliance with IRS guidelines. 

Donations are deductible to the extent allowable by law.

IN REGARD TO MEMBERSHIP REQUESTS

To ensure proper processing of your membership, please make sure to set your email filters to accept emails, from info@atypicalhus.org.

The Atypical HUS Foundation is an all-volunteer organization. Please allow at least 72 hours for an email response confirming your membership request.  If you do not receive an email, please check your spam folder or email directly to info@atypicalhus.org

Membership is open to patients, family, friends, caregivers research and medical personnel.

WELCOME - JOIN US!

The Atypical HUS Foundation encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.

Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.


NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.

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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.

 

Did you know...

CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
  
• • • • • • • • • • • •
  
It is estimated that there are about 2 cases of aHUS in the U.S. per 1,000,000 of population, and about 60% of aHUS patients are diagnosed as children. The condition is potentially life threatening, and either can be chronic or can recur at intervals.
  
more factoids...

Help us fight the battle

Your donation of $295.for an aHUS pearl bracelet will directly fund research to help aHUSpatient and their families. Each bracelet has an appraised value of $925, and is offered with your gift of $295. Note:  For shipping outside the USA, please add $25. to cover international shipping costs.

(Note: Bracelets do not qualify as tax deductible donations under IRS regulations.)

Normally, aHUS pearl bracelets to be made-to-order and as such expect a 4 to 6 week window before your custom bracelet is shipped.  In a rush?  Contact info@atypicalhus.org with your request and details.

 

 Donations of a specific dollar amount are welcome-every dollar will help aHUS research efforts supported by The Atypical HUS Foundation at www.atypicalhus.org.


Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Atypical HUS Foundation may be mailed to:

The Atypical HUS Foundation
C/O Deborah Lewis
PO Box 333
Barnhart, MO 63012


For pearl bracelet orders, please allow extra time for processing checks. Questions about aHUS donations? Please email info@atypicalhus.org

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