The Atypical HUS Foundation

DOC TO DOC Directory


Sharing the Expertise

Doc to Doc Directory

Professional Connections with Physicians, for Physicians

Physicians wishing to connect with other doctors experienced with the complexities of aHUS' multiple issues and presentations are encouraged contact these volunteer physicians.

Patients, Parents, Caregivers can email this Directory Page as a link to own doctors, share these  physican contact points as option for your care team's medical support. Alternatively, you may send your doctor's contact information for complex issues regarding aHUS diagnosis, treatment, and disease management.

We regret that physicans listed here keep busy schedules, so please respect that time limitations will not allow them to take individual patient phone calls or to answer patient emails.

Gianluigi Ardissino, MD, PhD
Center for HUS Control, Prevention and Management                       
Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Milano, Italia               
Tel.   +39.02.55032300
M:  +39.335.6065755                  
aHUS interests: Diagnosis and treatment of aHUS,  individualization of patient treatment, management of pediatric patients, transplantation in aHUS

Chatchawin Assanasen, MD
Associate Professor and Medical Director
UT Health Science Center
SouthTexas Pediatric Blood and Cancer Ctr
Div. of Hematology/Oncology
Dept. of Pediatrics
UTHSCSA Office:  (210) 743-2316
Fax: (201) 702-8012
aHUS interests: Diagnosis and treatment of aHUS,  participating member of Alexion’s ‘Speaker’s Bureau’ as a physician expert

Patrick Brophy, MD
University of Iowa
Pediatric Nephrology, Dialysis & Transplantation
Office: (319) 384-3090
Fax: (319) 384-3050
U of Iowa Heath Care
(319) 356-7249
Iowa City, Iowa

aHUS interests: diagnosis and ongoing care of multiple patients, dialysis issues, and transplantation (renal transplant with Soliris)


Bradley P. Dixon, MD

Associate Professor of Pediatrics

Department of Nephrology

Children’s Hospital of Colorado

13123 E. 16th Avenue, Box 328

Aurora, CO 80045

Voice: (720) 777-6263

Fax: (720) 777-7200

aHUS interests: Diagnosis and treatment of aHUS, participating member of Alexion’s ‘Speaker’s Bureau’ as a physician expert  

Stuart Goldstein, MD
University of Cincinnati College of Medicine
Division of Nephrology and Hypertension &
The Heart Institute
Director, Center for Acute Care Nephrology
Cincinnati Children's Hospital Medical Center
3333 Burnet Avenue
MLC 7022
Cincinnati, Ohio 45229
Phone: 513-636-2209
Fax: 513-636-7407
aHUS interests: long-term (10yrs+)PD dialysis, hemodialysis, growth issues/growth hormone


Tim Goodship,  MD
Professor of Renal Medicine
Institute of Genetic Medicine
Newcastle University
Central Parkway
Newcastle upon Tyne
Telephone 44 191 241 8632
aHUS interests – genetics, complement and all aspects of diagnosis/treatment

Carrie Gordon, MD
Oliver Fremont, MD

Maine Medical Partners Pediatric Specialty Care (Nephrology)
Office: (207) 662-5522
Fax: (207) 662-5526
Portland, Maine
The Barbara Bush Children's Hospital at Maine Medical Center
aHUS interests: multiple aHUS patients, Soliris, dual organ transplant, TRALI incidence with plasmapheresis


Paul C. Grimm,  MD

Stanford University School of Medicine,

Dept of Pediatric Nephrology

Lucile Packard Children's Hospital

Medical Director, Pediatric Kidney Transplant Program

Office:   (650) 723-7903

Fax       (650) 736-8423
aHUS interests: kidney transplantation in very young or complex patients  (both renal transplant with Soliris and combined kidney/liver transplants)


Joel Hernandez,  MD
Pediatric Nephrology
Providence Kidney Care

105 West 8th Ave, Suite 7040
Spokane, Washington  99204
Office: (509) 340-0930
aHUS interests: multiple aHUS patients, Soliris

Robert B. Kaplan, MD 
Faculty of the Division of Hematology and Cellular Therapy 
Medical Director, The Hemostasis-Thrombosis Laboratory
The Western Pennsylvania Hospital
The Western Pennsylvania  Allegheny Health System 
Pittsburg, PA  15224   
Office:  (412) 578-4355
Fax: (412) 578-4391
aHUS interests:  Adult aHUS Patients, Diagnosis and Initial/Long-Term Management, Harnessing Registry Data to Refine Treatment Strategies, Translating Complement Research into Optimization of Clinical Management, Rescuing Renal Grafts in  De Novo Renal Thrombotic Microangiopathy

Mathieu Lemaire, MSc, MDCM, PhD
Staff Nephrologist, The Hospital for Sick Children
Scientist-track Investigator, Cell Biology, Sick Kids Research Institute 
Asst. Professor, Paediatrics, University of Toronto 
Toronto, Canada
Office:  (416) 813-7654 ext. 309419
aHUS interests: Genetics, Gene discovery, DGKE-associated aHUS, translational research    

Christoph Licht, MD, FRCPC, FASN 
Associate Professor of Paediatrics
Division of Nephrology
The Hospital for Sick Children
555 University Avenue 
Toronto, ON, M5G 1X8, Canada
Tel.  +1 416 813 7654 x2058
Fax: +1 416 813 6271
aHUS interests: research focused on complement-based renal diseases  

Carla M. Nester,  MD
University of Iowa
Pediatric Nephrology, Dialysis & Transplantation
Office: (319) 353-7335
Fax: (319) 384-9616
U of Iowa Heath Care
(319) 356-1616
Iowa City, Iowa
aHUS Interests: diagnosis and ongoing care of both adult and pediatric patients, including the use of eculizumab and transplantation (renal transplant with Soliris)


Jeffrey M. Saland, MD, MSCR

Interim Chief of Nephrology, Assistant Professor of Pediatrics

Mount Sinai School of Medicine NewYork, NY  10029

Office:  (212) 241-6187

Fax:  (212) 426-1972

aHUS interests: Recognition and Initial Management, single or combined liver/kidney transplants


Amita Sharma, MD
Clinical Director
Division of Pediatric Nephrology
Massachusetts General Hospital for Children

Office:  (617) 726-2908

aHUS interests: transplant with Soliris


Yu-Min Shen,  M.D.                                                                                                                                       

Associate Professor                                                     

Division of Hematology/Oncology

Blood Disorders Clinic

Seay Biomedical Building, 2nd Floor

2201 Inwood Rd./ Dallas, Texas 75390-8852

Clinic 214-645-HOPE (4673) or 866-648-HOPE (4673)

aHUS interests:  Transitioning from pediatric to adult care settings, long-term dialysis issues


Julius Sherwinter, MD
Dunwoody Pediatrics (Nephrology) and the Children's Kidney Center
Office: (770) 394-2358
Atlanta, Georgia
Chief Pediatric Nephrology
Associate Clinical Professor
Children's Healthcare of Atlanta
aHUS interests: infants and Soliris

Andrew M. Siedlecki, MD
Brigham and Women's Hospital, Harvard Medical School
Division of Renal Medicine, Transplant Section
Location:  Harvard Institutes of Medicine
 77 Avenue Louis Pasteur, HIM Rm. 568B
Boston, MA  02115
PH:  (314) 809-2879
Fax:  (617) 582-6167
aHUS interests: diagnosis, presentation during pregnancy and bone-marrow transplantation, treatment and transplant implications, principal investigator of Boston aHUS registry

C. John Sperati, MD, MHS
Johns Hopkins University School of Medicine   
Division of Nephrology 
1830 E Monument St., Rm 416
Baltimore, MD  21205  
Office:  (410) 955-5268
Fax: (410) 367-2258
aHUS interests: Adult aHUS patients, diagnosis and treatment, novel diagnostics.  Johns Hopkins principal investigator for the international aHUS registry (Alexion Pharmaceuticals).


Christie P Thomas,  M.D.

Professor, Departments of Internal Medicine, Division of Nephrology.

Medical Director, Kidney Transplant Program

University of Iowa Carver College of Medicine

200 Hawkins Drive, SE419H GH

Iowa City, IA 52242

Tel:  319-3564216
Fax: 319-3562381 

aHUS interests:  Adult aHUS Patients, transplant concerns, nephrology and internal medicine issues


We deeply appreciate the generosity of the physicians above, who have graciously volunteered to share their aHUS expertise and experiences. We extend a warm welcome to all physicians or researchers with aHUS case experiences; doctors wishing to volunteer and add their contact information to this 'Doc to Doc' registry may notify or


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