The Atypical HUS Foundation

Fundraising DETAILS

We value those who wish to support aHUS research

with a fundraising effort.

Here are a few guiding principles to keep in mind.

  • The Atypical HUS Foundation is registered as a 501(c)3 non-profit organization and is in compliance with those and IRS regulations.


  • All fundraisers are approved by our organization's Director and Board after a review of the scope of the fundraiser.


  • Fundraising efforts MUST registered with our organization's accountant,  Deborah Lewis. Lead volunteers for these efforts provide information about the fundraiser's progress, and adhere to certain financial checks and balances that are simple yet effective at protecting donors and all others involved.


  • No individual or group is permitted to use the name, tax exempt status, graphic images, or other attributes without prior written approval and permission of The Atypical HUS Foundation and its representatives.


  • Fundraisers benefiting a specific patient, family, or other organization are sometimes permitted to use the name of The Atypical HUS Foundation when aHUS research fundraising is a key part of their stated goals.  Prior written authorization is required to maintain our organization's compliance with regulations specific to our status as a 501c3 non-profit.

Please CONTACT The Atypical HUS Foundation

FMI about Fundraisers at:

Deborah Lewis    E:   Ph:  314-363-1040

Considerations when Planning an aHUS Fundraiser

All fundraisers should be done in good taste. They are representative of the Foundation, and in a broader sense, our collaborative partners.

 Do not co-mingle fundraiser beneficiaries without an expressed written approval from the Board. (i.e. fundraisers intended to benefit a specific family/patient vs. the foundation). This isn’t intended to imply that you aren't able to host a personal fundraiser, however, we ask that you consider the motto “we don’t help one child, we help all children”.

 Honor System. We understand that to promote a fundraiser, a personal financial investment may be required. At the end of the fundraiser, these funds would be returned to you. While it may prove difficult to monitor these finances, we trust that in the interest of the purpose, those individuals who host a fundraiser are honorable and trustworthy.

EVERY DOLLAR COUNTS !  Your donation funds efforts to foster improved outcomes for aHUS patients through research and via education for patients, families, and physicians.  

The Atypical HUS Foundation, a 501(c)3 non-profit,

welcomes donations of any amount, whether online or via mailed check,

and will gladly to provide documentation for employers

who offer 'matching gifts' to charitable organizations.   


Donations may be mailed to:

The Atypical HUS Foundation
C/O Deborah Lewis
PO Box 333
Barnhart, MO 63012

Contact info for Deborah Lewis,    E:   Ph:  314-363-1040

Our organization's FINANCIAL REPORTS, and other documents, are available upon request from Deborah A. Lewis CPA, MBA 



or receive an aHUS Pearl Bracelet as your gift for a $295. donation

*Guidelines are subject to updates, please contact Crystal Ferreira at, if you have any questions or concerns.



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