Image & Content Release
Without consideration received but by voluntary contribution, I hereby give permission to The Foundation for Children with Atypical HUS to use my or my minor child's name, our written material or statements, and/or our photographic likeness in all forms and media for press releases, awareness campaigns, trade, and any other lawful purposes. I waive any right that I or the minor may have to inspect or approve any finished product(s), images, copy or printed matter that may be used in connection with such text or photographs.
The Foundation for Children with Atypical HUS, or their representatives, have the right and permission to use and publish text and/or pictures of me, my family or minor child, in whole or in part without restriction and in conjunction with their name(s). I consent to the release and use of any written material or images submitted by me, my family members or by the parent/guardian of a minor child and posted/sent to their websites, the representatives of The Foundation for Children with Atypical HUS, it media outlets or any/all of its website members.
Posting images or text on www.atypicalhus.org indicates that you have read this release and agree to its terms. Posted 5/16/11
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
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It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
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