The Atypical HUS Foundation

Medical Advisory Panel

The Atypical HUS Foundation is pleased to introduce its Medical Advisory Panel.  
We appreciate their service and  recognize that these physicians’ unique blend
of skills and experience offer valued guidance in core areas important to aHUS patients and their families.

Dr. Craig Belsha                    Dr. Joseph J. Krug                    Dr. Amita Sharma

 

Dr. Craig Belsha, MD

Pediatric Nephrology

 

Contact info:

(314) 577-5662

1465 S Grand Blvd
Saint Louis, MO 63104

Email: belshacw@slu.edu

 

Board Certification: 

Pediatric Nephrology,

Pediatrics

 

Specialty Areas:

Pediatric Nephrology

 

Practice Affiliations:

SSM CARDINAL GLENNON CHILDREN'S MEDICAL CENTER

 

Hospital affiliations:

SSM Cardinal Glennon Children’s Medical Center

St Louis University Hospital

 

Clinical Interests:

Hypertension, Dialysis Care,

Transplant Medicine-Kidney

 

Medical Education:

MD: University of Missouri-Kansas City School of Medicine

Residency: PediatricsBaylor College of Med Houston, TX

Fellowship: Pediatric Nephrology Baylor College of Medicine, Houston, TX

 

 

Faculty Appointment:

Professor, Pediatrics
St Louis University

 

Dr. Joseph J. Krug, MD

B.A., M.D., F.A.C.E.P.

 

Contact info:

Email: jjkrugmd@comcast.net

Phone: (309) 361-4687

 

Faculty Appointment:

Professor, Pediatrics
St Louis University

Board Certification: 

Emergency Medicine,  

American Board of Emergency Medicine

 

Hospital Affiliations:

Emergency Medical Services

OSF Saint Francis Medical Center Peoria, IL

Medical Staff Affiliations:

OSF Saint Francis Medical Center Peoria, IL

 

Pekin Hospital

Pekin, Illinois

 

Other:                    

Former Medical Director Emergency/Trauma Services

St. Mary Medical Center

Galesburg, IL

 

Father of child with aHUS 

 

Clinical Interests:       

aHUS Diagnosis, aHUS issues with Multi-Organ Involvement,  Chronic Kidney Disease,  Therapeutic use of Soliris

 

Medical Education:

B. A. University of Illinois, Chicago

M.D. Rush University, Rush Medical College

Rush Presbyterian St. Luke's Medical Center Chicago, Illinois

Residency:  Rush Presbyterian St. Luke's Medical Center, Chicago, Illinois

Fellowships:  Fellow, American College of Emergency Physicians

Fellow, American Board of Forensic Examiners  

 

 

Dr. Amita Sharma, MD

 

 

 

 

 

 

 

Clinical Director

Division of Pediatric Nephrology

Massachusetts General Hospital for Children

E-mail: asharma5@partners.org

 

Board Certification:

Pediatrics, American Board of Pediatrics;

Pediatric Nephrology, American Board of Pediatrics

 

Hospital Affiliation:           

Locations

Boston: Massachusetts General Hospital

Salem: North Shore Medical Center

 

Practice

Pediatric Nephrology Associates
55 Fruit Street
Boston, MA 02114
(617) 726-2908

 

Clinical Interests:                    

Genetic diseases, Glomerular disease   

Chronic kidney disease, Transplant  

Metabolic bone disease; Nephrolithiasis

           

Medical Education:  

MBBS: Lady Hardinge Medical College  

MD: Maulana Azad Medical College ; University of Delhi  

Residency: Miami Children's Hospital  

Fellowship: Jackson Memorial Hospital;University of Miami 

 

Foundation for Children with Atypical HUS

A 501(c)3 Organization

     The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this ultra-rare and complex disorder of the complement system. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome. Sharing information, inspiration and support for one another, we seek to gather together people and knowlege as we strive to improve the lives of patients and families dealing with aHUS.

 

Informational Site: Visit us at http://www.atypicalhus.net/ Bill Biermann, Webmaster ( bbiermann@premier-ks.com )

Interactive Website: Visit us at http://www.atypicalhus.org/ Linda Burke, Webmaster ( linda@atypicalhus.org )

 

Address Correspondence to:

Bill Biermann, Director

The Foundation for Children with Atypical HUS

One Campbell Plaza Suite 2B

St. Louis, MO 63139

 

IN REGARD TO MEMBERSHIP REQUESTS

To ensure proper processing of your membership, please make sure to set your email filters to accept emails, from info@atypicalhus.org.

The Atypical HUS Foundation is an all-volunteer organization. Please allow at least 72 hours for an email response confirming your membership request.  If you do not receive an email, please check your spam folder or email directly to info@atypicalhus.org

Membership is open to patients, family, friends, caregivers research and medical personnel.

WELCOME - JOIN US!

The Atypical HUS Foundation encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.

Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.


NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.

************************

NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.

 

Did you know...

CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
  
• • • • • • • • • • • •
  
It is estimated that there are about 2 cases of aHUS in the U.S. per 1,000,000 of population, and about 60% of aHUS patients are diagnosed as children. The condition is potentially life threatening, and either can be chronic or can recur at intervals.
  
more factoids...

Help us fight the battle

Your donation of $295.for an aHUS pearl bracelet will directly fund research to help aHUSpatient and their families. Each bracelet has an appraised value of $925, and is offered with your gift of $295. Note:  For shipping outside the USA, please add $25. to cover international shipping costs.

(Note: Bracelets do not qualify as tax deductible donations under IRS regulations.)

Normally, aHUS pearl bracelets to be made-to-order and as such expect a 4 to 6 week window before your custom bracelet is shipped.  In a rush?  Contact info@atypicalhus.org with your request and details.

 

 Donations of a specific dollar amount are welcome-every dollar will help aHUS research efforts supported by The Atypical HUS Foundation at www.atypicalhus.org.


Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Atypical HUS Foundation may be mailed to:

The Atypical HUS Foundation
C/O Deborah Lewis
PO Box 333
Barnhart, MO 63012


For pearl bracelet orders, please allow extra time for processing checks. Questions about aHUS donations? Please email info@atypicalhus.org

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