The Atypical HUS Foundation

DOC TO DOC DIRECTORY, Adult Focus

Sharing the Expertise

A Professional Resource Regarding Treatment of

ADULT aHUS Patients


  'Doc to Doc Directory'



The Foundation for Children with Atypical HUS deeply appreciates the generosity of the physicians below, who have graciously volunteered to share their aHUS expertise and experiences treating adult aHUS patients with other medical personnel.

 

 

Physicians wishing to connect with other doctors experienced with the complexities of aHUS' multiple issues and presentations may contact:

 

Robert B. Kaplan, MD

Faculty of the Division of Hematology and Cellular Therapy

Medical Director,The Hemostasis-Thrombosis Laboratory

The Western Pennsylvania Hospital

The Western Pennsylvania Allegheny Health System

Pittsburgh, PA 15224

OFFICE: (412)-578-4355

FAX:      (412)-578-4391

rbkaplan@wpahs.org

aHUS interests:  Diagnosis and Initial/Long-Term Management, Harnessing Registry Data to Refine Treatment Strategies, Translating Complement Research into Optimization of Clinical Management, Rescuing Renal Grafts in  De Novo Renal Thrombotic Microangiopathy

 

Carla M. Nester, MD


University of Iowa
Pediatric Nephrology, Dialysis & Transplantation

Office: (319) 353-7335
Fax: (319) 384-9616

U of Iowa Heath Care
(319) 356-1616
Iowa City, Iowa
carla-nester@uiowa.edu


aHUS Interests: diagnosis and ongoing care of both adult and pediatric patients, including the use of eculizumab and transplantation (renal transplant with Soliris)

Andrew M. Siedlecki, MD


Brigham and Women's Hospital, Harvard Medical School
Division of Renal Medicine, Transplant Section
Location:  Harvard Institutes of Medicine
 77 Avenue Louis Pasteur, HIM Rm. 568B
Boston, MA  02115
PH:  (314) 809-2879
Fax:  (617) 582-6167

asiedlecki@partners.org
aHUS interests: diagnosis, presentation during pregnancy and bone-marrow transplantation, treatment and transplant implications, principal investigator of Boston aHUS registry

 

Yu-Min Shen, M.D.

Associate Professor

Division of Hematology/Oncology

 Blood Disorders Clinic

Seay Biomedical Building, 2nd Floor

2201 Inwood Rd./ Dallas, Texas 75390-8852

Clinic 214-645-HOPE (4673) or 866-648-HOPE (4673)

www.utsouthwestern.org

aHUS interests:  Transitioning from pediatric to adult care settings, long-term dialysis issues

C. John Sperati, MD, MHS
Johns Hopkins University School of Medicine   
Division of Nephrology 
1830 E Monument St., Rm 416
Baltimore, MD  21205   
Office:  (410) 955-5268
Fax: (410) 367-2258
Email:  jsperati@jhmi.edu
aHUS interests: Adult aHUS patients, diagnosis and treatment, novel diagnostics.  Johns Hopkins principal investigator for the international aHUS registry (Alexion Pharmaceuticals).

 

Christie P. Thomas, MD

Professor, Departments of Internal Medicine, Division of Nephrology
Medical Director, Kidney Transplant Program
University of Iowa Carver College of Medicine
200 Hawkins Drive, SE419H GH
Iowa City, IA  52242
PH:  (319) 356-4216
Fax:  (319) 356-2381

christie-thomas@uiowa.edu 
aHUS interests: Adult aHUS Patients, transplant concerns, nephrology and internal medicine issues.

 

 

 

 

We deeply appreciate the generosity of the physicians above, who have graciously volunteered to share their aHUS expertise and experiences.

 

Explore further options for professional connections with our full cadre of volunteer physicians.  See our

expanded version of the Doc to Doc Directory.

 

We extend a warm welcome to all physicians or researchers with aHUS case experience and who desire to connect with other medical personnel to aid aHUS outreach and education efforts. 

 

Doctors wishing to add their contact information to this 'Doc to Doc' registry may notify linda@atypicalhus.org or info@atypicalhus.org .

 

 

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