A Professional Resource Regarding Treatment of
ADULT aHUS Patients
'Doc to Doc Directory'
The Foundation for Children with Atypical HUS deeply appreciates the generosity of the physicians below, who have graciously volunteered to share their aHUS expertise and experiences treating adult aHUS patients with other medical personnel.
Physicians wishing to connect with other doctors experienced with the complexities of aHUS' multiple issues and presentations may contact:
Robert B. Kaplan, MD
Faculty of the Division of Hematology and Cellular Therapy
Medical Director,The Hemostasis-Thrombosis Laboratory
The Western Pennsylvania Hospital
The Western Pennsylvania Allegheny Health System
Pittsburgh, PA 15224
aHUS interests: Diagnosis and Initial/Long-Term Management, Harnessing Registry Data to Refine Treatment Strategies, Translating Complement Research into Optimization of Clinical Management, Rescuing Renal Grafts in De Novo Renal Thrombotic Microangiopathy
Carla M. Nester, MD
University of Iowa
Pediatric Nephrology, Dialysis & Transplantation
Office: (319) 353-7335
Fax: (319) 384-9616
U of Iowa Heath Care
Iowa City, Iowa
aHUS Interests: diagnosis and ongoing care of both adult and pediatric patients, including the use of eculizumab and transplantation (renal transplant with Soliris)
Andrew M. Siedlecki, MD
Brigham and Women's Hospital, Harvard Medical School
Division of Renal Medicine, Transplant Section
Location: Harvard Institutes of Medicine
77 Avenue Louis Pasteur, HIM Rm. 568B
Boston, MA 02115
PH: (314) 809-2879
Fax: (617) 582-6167
aHUS interests: diagnosis, presentation during pregnancy and bone-marrow transplantation, treatment and transplant implications, principal investigator of Boston aHUS registry
Yu-Min Shen, M.D.
Division of Hematology/Oncology
Blood Disorders Clinic
Seay Biomedical Building, 2nd Floor
2201 Inwood Rd./ Dallas, Texas 75390-8852
Clinic 214-645-HOPE (4673) or 866-648-HOPE (4673)
aHUS interests: Transitioning from pediatric to adult care settings, long-term dialysis issues
C. John Sperati, MD, MHS
Johns Hopkins University School of Medicine
Division of Nephrology
1830 E Monument St., Rm 416
Baltimore, MD 21205
Office: (410) 955-5268
Fax: (410) 367-2258
aHUS interests: Adult aHUS patients, diagnosis and treatment, novel diagnostics. Johns Hopkins principal investigator for the international aHUS registry (Alexion Pharmaceuticals).
Christie P. Thomas, MD
Professor, Departments of Internal Medicine, Division of Nephrology
Medical Director, Kidney Transplant Program
University of Iowa Carver College of Medicine
200 Hawkins Drive, SE419H GH
Iowa City, IA 52242
PH: (319) 356-4216
Fax: (319) 356-2381
aHUS interests: Adult aHUS Patients, transplant concerns, nephrology and internal medicine issues.
We deeply appreciate the generosity of the physicians above, who have graciously volunteered to share their aHUS expertise and experiences.
Explore further options for professional connections with our full cadre of volunteer physicians. See our
We extend a warm welcome to all physicians or researchers with aHUS case experience and who desire to connect with other medical personnel to aid aHUS outreach and education efforts.
Doctors wishing to add their contact information to this 'Doc to Doc' registry may notify email@example.com or firstname.lastname@example.org .