The Atypical HUS Foundation

VIDEO Topics

 

 

aHUS CLINICAL Channel

Physicians and researchers from the USA, France, the UK, and other nations offer information about atypical HUS. 

Click HERE  to view the Atypical HUS CLINICAL Channel 

YouTube Channel of The Atypical HUS Foundation

Rare Disease Day videos, videos from the University of Iowa aHUS Family Conferences, Patient and Family videos, and MORE

Click HERE  to view the YouTube Channel of The Atypical HUS Foundation


2014 aHUS Conference - the University of Iowa

Clinicians and researchers present information from the 2014 aHUS Family Conference at the University of Iowa.

*  Dr Carla Nester's topic:  aHUS Diagnosis, Treatment, and New Horizons    

View  Dr. Nester's presentation  (length approx. 37 mins)

 

*  Dr. Christie Thomas' topic:  Transplantation for aHUS: Before & After  

View  Dr. Thomas' presentation   (length approx. 42 mins)

 

*  Dr. Richard Smith's topic:  The Complement System Made Simple 

Vie Dr. Smith's presentation  (length approx. 36 mins)

*  Fengxiao Bu's topic:  Current Research on aHUS  

View  Fengxiao Bu's presentation   (length approx. 13 mins)

*  Nicolo' Borsa's topic:  Genetic Testing Process  

View  Nicol' Borsa's presentation   (length approx. 16 mins)

*  Dr. Jody L. Jones' presents a clinical psychologist's view of the impact of a chronic disease on the patient and  their family.  Resource List, too!

Rare Disease Challenges: Support for Patients & Families  (length approx. 16 mins)

Video's Resource List for Social, Emotional and Family Support plus helpful tips for friends and co-workers!  www.bit.ly/RareDiseaseResources

 

 

 

 

 2011 aHUS Conference - the University of Iowa

Clinicians and researchers present information from the 2011 aHUS Family Conference at the University of Iowa.

*  Dr Carla Nester's topic:  Definition of aHUS, Diagnosing aHUS, Overview of Complement    

View  Dr. Nester's presentation  (length approx. 27 mins)

 

*  Dr. Christie Thomas' topic:  Treatment of atypical HUS:  Plasmatherapy, Eculizumab (Soliris), Options for ESRD, Transplants, Data from published studies/reports   (length approx. 33 mins)

View  Dr. Thomas' presentation   (length approx. 33 mins)

 

*  Dr. Richard Smith's topic:  Atypical HUS, Genetics, and the Complement Cascade 

Vie Dr. Smith's presentation   (length approx. 32 mins)

 

 

aHUS Video Clip Library, from the 2011 aHUS Conference - the University of Iowa

Culled from the full presentations, these topic-specific video clips less than 5 minutes capture clinicians and researchers as they present information at the 2011 aHUS Family Conference at the University of Iowa.

The index features such headings as 'Diagnosing aHUS' and 'aHUS and Genetics' in addition to a variety of clips dealing with treatment options.

Click below to access links to dozens of topic-specific video clips.

click here to download the Microsoft Word document

click here to download the PDF document

 

 

Patient & Family Videos

Videos and slideshows created by aHUS patients and their families. 

Click HERE  to view Patient & Family Videos and Slideshows

 

RARE DISEASE DAY is recognized globally on the last day of February each year. 

WATCH these video messages, created especially for Rare Disease Day by patients and their families.

 

 

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