The Atypical HUS Foundation

ALPHA MARKETING
  • Female
  • Raleigh, NC
  • United States
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  • Cheryl Biermann
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Do you have a friend or family member diagnosed with aHUS?
Yes
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
My membership request involves business interests as I seek additional aHUS information for business applications.
no
My child ( or myself as a patient) is best described as:
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How to Get and Use Your aHUS Badge

Hi All,



I have been getting some feedback that people are having issues getting their Badge to work. So, I have put together a pdf with instructions on making and using them. Just click on the link below.



I hope you all get out and use them. They are great for letting people know about the site.



Thanks,

Christy…



Continue

Posted on August 22, 2009 at 8:49pm

ALPHA Marketing and aHUS

Our team at ALPHA was very fortunate to be able to create this social network for the families and communities dealing with atypical HUS. We hope you all find it a useful place to share, get advice and support, increase awareness, and raise money to help these families.



If you or someone you know is looking for help setting up their own social network, please let us know. We would love to help.



Thanks,

Christy



Christy White,

Creative… Continue

Posted on May 9, 2009 at 11:30am

Comment Wall (7 comments)

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At 8:26pm on December 17, 2010, Cheryl Biermann said…

Christy,

I do not believe I've ever thanked Alpha Marketing for this outstanding site, a serious over-site.  If, I ever hear of anyone needing a site, you can be sure Alpha Marketing will get a plug from me!

Thanks!

 

 

 

At 4:30pm on November 28, 2010, Nicolas said…
Christy thank you for creating this site.
It takes an international scale.
Bravo.
At 4:34pm on January 1, 2010, Linda Burke said…
Happy New Year, Christy!
One of our biggest blessings this year has been the creation of this website for aHUS patients and families - thank you for all your hard work involved in creating this site, and the whole Alpha Marketing team involed in this amazing endeavor!
At 12:23pm on December 16, 2009, Phyllis Ann Talbot said…
Thanks Christy - I'll check with him - I know the file size is less then 100 MB - he thinks he had it figured out - I'll yell if it doesnt work tonight n- hope it does - came out REALLY well I think.
At 8:13pm on December 15, 2009, Phyllis Ann Talbot said…
Christy - have a technical question - I have an amazing video that a friend of my brother's did for us for our Hike coming up in the spring. He tried to upoad the video tonight to this webpage and thought it was working but we got an e-mail saying that the upload did not complete due to a conversion error? The title of the video is Hike4Hyde? Any help would be greatly appreciated.
At 11:57pm on July 16, 2009, Linda Burke said…
Christy,
As we look over the past month since this aHUS interactive website has launched, I am amazed at how your fine work has positively affected the world of our aHUS families. By connecting us to share information and support, we can explore common experiences and gain insight into treatment options for our loved ones. Additionally, we can now actively help our child's doctors to connect with other medical personnel who have experience with specific topics dealing with aHUS issues.
I know other families and friends join me in extending our deepest thanks for creating this website - it rocks!
At 8:50pm on July 15, 2009, Vicki Ravely said…
Thank you Christy and ll else involved with this project. We distant families are grateful to see photos of other A-typical HUS patient's and their families. We don't know a single other patient, except a little information through our wonderful doctor's at Children's Hospital in Seattle. Vicki Ravely and family (Paul's family)
 
 
 

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