The Atypical HUS Foundation

Alicia Gonzalez
  • Ocala, FL
  • United States
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Alicia Gonzalez's Friends

  • Lisa
  • Chenille Stewart
  • Cheryl Biermann
  • Linda Burke

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Alicia Gonzalez posted a photo
Jul 8, 2015
Alicia Gonzalez posted a status
"When is there going to be another meet near or in florida?"
Jul 8, 2015
Lisa and Alicia Gonzalez are now friends
Apr 13, 2015
Linda Burke left a comment for Alicia Gonzalez
"Hi Alicia, Welcome - the info you're looking for is under the tab 'aHUS Materials & Info', click on the aHUS Bootcamp.  It has a link to the NIH GeneReview for aHUS, all sorts of medical info and resource links.  In our…"
May 18, 2014
Alicia Gonzalez is now a member of The Atypical HUS Foundation
May 18, 2014
Alicia Gonzalez shared ALPHA MARKETING's page on Facebook
May 17, 2014
Alicia Gonzalez shared ALPHA MARKETING's page on Facebook
Dec 19, 2012

Profile Information

November 4
I am an adult aHUS patient.
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
I have attended a meeting or conference to learn about aHUS.
NO - but I'd like to attend a future meeting.
My membership request involves business interests as I seek additional aHUS information for business applications.
I am a 21 year olds mother that has recently been diagnosed with a typical hus and I am seeking more information about the disease I have.

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Join The Atypical HUS Foundation

At 10:11am on May 18, 2014, Linda Burke said…

Hi Alicia,

Welcome - the info you're looking for is under the tab 'aHUS Materials & Info', click on the aHUS Bootcamp.  It has a link to the NIH GeneReview for aHUS, all sorts of medical info and resource links.  In our materials tab you'll find a one page flyer that you can share with family and friends - it's a basic description of aHUS.

Check out the tab for Adults with aHUS to connect with others who share your issues, and you're welcome to post comments or a blog as well.



To ensure proper processing of your membership, please make sure to set your email filters to accept emails, from

The Atypical HUS Foundation is an all-volunteer organization. Please allow at least 72 hours for an email response confirming your membership request.  If you do not receive an email, please check your spam folder or email directly to

Membership is open to patients, family, friends, caregivers research and medical personnel.


The Atypical HUS Foundation encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.

Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.

Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.


NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.


Did you know...

CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
• • • • • • • • • • • •
It is estimated that there are about 2 cases of aHUS in the U.S. per 1,000,000 of population, and about 60% of aHUS patients are diagnosed as children. The condition is potentially life threatening, and either can be chronic or can recur at intervals.
more factoids...

Help us fight the battle

Your donation of $295.for an aHUS pearl bracelet will directly fund research to help aHUSpatient and their families. Each bracelet has an appraised value of $925, and is offered with your gift of $295. Note:  For shipping outside the USA, please add $25. to cover international shipping costs.

(Note: Bracelets do not qualify as tax deductible donations under IRS regulations.)

Normally, aHUS pearl bracelets to be made-to-order and as such expect a 4 to 6 week window before your custom bracelet is shipped.  In a rush?  Contact with your request and details.


 Donations of a specific dollar amount are welcome-every dollar will help aHUS research efforts supported by The Atypical HUS Foundation at

Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Atypical HUS Foundation may be mailed to:

The Atypical HUS Foundation
C/O Deborah Lewis
PO Box 333
Barnhart, MO 63012

For pearl bracelet orders, please allow extra time for processing checks. Questions about aHUS donations? Please email



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