The Atypical HUS Foundation

Alicia Gonzalez
  • Ocala, FL
  • United States
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  • Linda Burke
 

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Profile Information

Birthday
November 4
I am an adult aHUS patient.
Yes
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
Yes
I have attended a meeting or conference to learn about aHUS.
NO - but I'd like to attend a future meeting.
My membership request involves business interests as I seek additional aHUS information for business applications.
I am a 21 year olds mother that has recently been diagnosed with a typical hus and I am seeking more information about the disease I have.

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Comment Wall (2 comments)

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At 8:26am on April 26, 2017, Santosh Suryawanshi said…

Good Morning Alicia

My 9 year son is diagnosed with Ahus, Next month I am travelling to Tampa Florida. I need your help to find Doctor details from Tampa FL area who has good experience on Ahus.  Thanks for your help..

At 10:11am on May 18, 2014, Linda Burke said…

Hi Alicia,

Welcome - the info you're looking for is under the tab 'aHUS Materials & Info', click on the aHUS Bootcamp.  It has a link to the NIH GeneReview for aHUS, all sorts of medical info and resource links.  In our materials tab you'll find a one page flyer that you can share with family and friends - it's a basic description of aHUS.

Check out the tab for Adults with aHUS to connect with others who share your issues, and you're welcome to post comments or a blog as well.

 
 
 

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