The Atypical HUS Foundation

Amber S Schlaht
  • Female
  • Grand Prairie, TX
  • United States
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  • Lisa Reed
  • Erin Adams
  • Rhonda Banks
  • Linda Burke
 

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Profile Information

Birthday
July 29
Do you have a friend or family member diagnosed with aHUS?
No
I am an adult aHUS patient.
Yes
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
I have attended a meeting or conference to learn about aHUS.
NO - but I'd like to attend a future meeting.
My membership request involves business interests as I seek additional aHUS information for business applications.
1978

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Amber S Schlaht's Blog

Speaking on behalf of the Foundation at the Phoenix meet up in December 2015

Just recently I was asked to tell my story and speak on behalf of the atypical HUS Foundation at the Phoenix meet up. 

My husband and I are from the Dallas Texas area, so we flew out to Phoenix first thing Friday, December 4. We got checked into our hotel and attended the dinner provided by Global Genes. During the dinner, we had an "ice breaking" type activity. The goal was to introduce yourself to the group, tell where you are from, and tell an embarrassing story about…

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Posted on December 16, 2015 at 11:56am

My Journey this far with aHUS

Early in September 2014, I started not feeling well. I was tired all the time, dizzy, getting headaches, brain fog, dark urine, and overall not feeling well. I kept telling myself that I needed to go have blood work done, but I kept putting it off.

 

Sunday, Sept 6th, I knew something wasn’t right. So off to the ER we went. After waiting forever to see a doctor. I had blood work drawn, got one bag of IV saline and was released with…

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Posted on November 10, 2014 at 11:04am — 5 Comments

Comment Wall (2 comments)

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At 7:43pm on October 14, 2015, Erin Adams said…
Thanks Amber! I've actually been a part of this group for a while now. When were you diagnosed?
At 12:58am on October 25, 2014, Linda Burke said…

Welcome Amber, hope this website is a source of information and support.  There's an aHUS regional meeting in Texas on  Nov 7 and 8, with details at http://atypicalhus.ning.com/events/nord-2014-ahus-regional-meetings .

 
 
 

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