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Bonnie Warren
- Female
- Newton Grove, NC
- United States
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Bonnie Warren's Page
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Profile Information
- Birthday
- January 4
- Do you have a friend or family member diagnosed with aHUS?
- Yes
- Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
- No
- My child ( or myself as a patient) is best described as:
- Question Does Not Apply To My Situation
Comment Wall (4 comments)
- At 8:04am on October 21, 2009,
Lisa Goble said… - Welcome to this site. Here you will find support, understanding, luv, and hopefully some answers to your questions. Looking forward to hearing your story=)
- At 8:03am on October 21, 2009,
Lisa Goble said…
- Welcome to the site...here you will find support, understanding, and hopefully some answers to your questions. Occasionally, you might want to have a box of kleenex nearby when reading our stories. Looking forward to reading yours=)
- At 7:34pm on October 18, 2009,
Heather Still said…
- Welcome to the aHUS website. We just returned from an awesome conference in Iowa and learned so much about the illness. Looking forward to hearing more of your story and you are welcome to read my page with our story.
- At 11:16pm on October 13, 2009,
Linda Burke said…
- Hi Bonnie!
Welcome to the interactive website of the Foundation for Children with Atypical HUS, a place where you can gain information, inspiration, and insights into this rare disorder. We're putting the final touches on our 10/16th and 17th conference at the University of Iowa, so you're just in time to visit the CONFERENCE Forums and add questions for the researchers presenting at this aHUS conference. I notice that you have "a friend or family member" with aHUS, so it might be that that you simply wish to support a friend - in either case we are glad for your participation on this networking site. Best, Linda
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "About aHUS" tab at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
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