The Atypical HUS Foundation

Cassie
  • Female
  • Delevan, NY
  • United States
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Cassie's Friends

  • Jonathan Aguallo
  • Pearl Lewis
  • Martha L. Rusche
  • CRAIG McCASLIN
  • Grace
  • Mary O'Shea
  • Ruth Talbot
  • Catherine F. Cornell
  • Melissa Hearn
  • Caryn Combs
  • Woody Woodruff
  • Teresa G. Craig
  • Lisa L. Brown
  • Jessica Olivia Frysz
  • Tammy Sheehan
 

Cassie's Page

Profile Information

Birthday
November 12
Do you have a friend or family member diagnosed with aHUS?
Yes
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
My child ( or myself as a patient) is best described as:
Tested but Results are Inconclusive

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Cassie's Blog

Cassie added a comment to your profile on The Foundation for Children with Atypical HUS ------------ It's been so long since I have been on here wow can't believe it. The results of his tests showed…

Cassie added a comment to your profile on The Foundation for Children with Atypical HUS



------------

It's been so long since I have been on here wow can't believe it. The results of his tests showed unknown cause he was diagnosed ahus. Our current situation: I'm happy to report that Evan is doing great no set backs or relapses at this time. He continues seeing the kidney doctors (we up to 1 time a year) we just recently went to an appt and everything still looks perfect. My… Continue

Posted on May 22, 2013 at 11:58pm

update on evan

hope everyones holidays were great..i havent been on here in such a while i figured i would just write a short little update on evan...we have been so lucky that evan has been completely healthy since we came home from the hospital in september..he is going every 4 weeks now to the doctors..he has made it threw his first ear infection, stomach flu, cold, and a viral infection..and nothing has effected him at this point..we are so blessed....thank you lord...hope all of your children are doing… Continue

Posted on January 21, 2010 at 9:55am — 5 Comments

I am happy to announce that evans labs continue to improve and are all within normal limits..and on wed oct 28th evan had his phoresis catheter removed!! yayyy!! after a long 14 weeks he got to final…

I am happy to announce that evans labs continue to improve and are all within normal limits..and on wed oct 28th evan had his phoresis catheter removed!! yayyy!! after a long 14 weeks he got to finally enjoy his bath time Continue

Posted on November 4, 2009 at 10:09pm — 7 Comments

update on evan

it is going on 4 weeks since evan has been home. it is also going on 4 weeks tomarrow since he has had any plasmapheresis. all of his lab values are back to normal. drs just told us that most of his genetic testing has come back and thats negative..bad news is there is still no cause..they seem to think he is in that small percentage that are idiopathic..they really are not sure what to think because every test has come back negative or within normal limits..they say that he has almost all of… Continue

Posted on October 11, 2009 at 10:57pm — 7 Comments

Comment Wall (11 comments)

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At 10:51pm on May 22, 2013, Cassie said…
It's been so long since I have been on here wow can't believe it. The results of his tests showed unknown cause he was diagnosed ahus. Our current situation: I'm happy to report that Evan is doing great no set backs or relapses at this time. He continues seeing the kidney doctors (we up to 1 time a year) we just recently went to an appt and everything still looks perfect. My brave little baby who was once so sick has grown up to be such a lil man. He is 4 and is in pre school currently playing tball. There isn't a day that goes by that I don't think about all of your families and I truly hope you can have the luck Evan was handed. Stay strong families and stay positive! You will find your light at the end of your tunnel. My thoughts and prayers are with you all:)
At 12:12am on November 6, 2009, Christy said…
Cassie--Evan is such a cutie--beautiful eyes! Looking forward to talking more with you ; ) . Hang in there mama!
At 6:12pm on September 21, 2009, Heather Still said…
Glad to hear that Evan is home. We spent 13 weeks inpatient when Ryan was first diagnosed....the relief of being home is amazing. Just realized you are a NYS family....we're an hour east of Syracuse.
At 2:46pm on September 10, 2009, Scott Woodruff said…
Hey Cassie, how's things? I'm Linda and Sky Burke's nephew and cousin, respectively. Welcome to the network!
At 2:06pm on September 8, 2009, Cheryl Biermann said…
Oops, Cassie, I just saw from your profile that you are still awaiting test results...I guess that means they know it's Atypical HUS but not what causes it? Hope your experience so far hasn't been too awful.
At 2:04pm on September 8, 2009, Cheryl Biermann said…
Welcome Cassie, happy to meet you, did you put out a blog yet? I'm not very good at this computer stuff so maybe I missed yours. If not, please do, as we all look forward to meeting new people and their children and families!
At 12:13pm on September 8, 2009, Teresa G. Craig said…
Welcome! Terry (Linda Burke's sister)
At 12:40pm on September 7, 2009, Heather Still said…
Welcome to our network!!! Look forward to learning more about you and your family.
At 11:05pm on September 6, 2009, Amy Swarbrick said…
Glad you have joined. My 17 month old son was diagnosed this year. If you ever want to talk just let me know.
At 8:21pm on September 6, 2009, Linda Burke said…
Hi Cassie!
Welcome to the interactive website for The Foundation for Children with Atypical HUS. On the Home Page you'll find the link to www.atypicalhus.50megs.org which is filled with detailed information about aHUS. This site is a social network where patients, families, friends, and researchers can share information and inspiration while providing support from others dealing with aHUS issues. We hope that you add questions and comments as you explore this website, and we look forward to your participation.
 
 
 

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