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Catherine F. Cornell
- Female
- Cape Elizabeth, ME
- United States
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Catherine F. Cornell's Page
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Profile Information
- Birthday
- July 19
- Do you have a friend or family member diagnosed with aHUS?
- Yes
- Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
- No
- My child ( or myself as a patient) is best described as:
- Question Does Not Apply To My Situation
Comment Wall (1 comment)
- At 8:36am on August 10, 2009,
Linda Burke said…
- Hi Mrs Cornell!
Thanks for joining to learn more about atypical HUS- Skyler is looking forward to the fun in your Kindergarten classroom this Fall! This interactive website has a tab on the front page "About aHUS" that gives basic info about this condition, but there is a wealth of info on Foundation director Bill Biermann's terrific site. If you check the Links box on the Home Page, it will take you right to detailed aHUS info at www.atypicalhus.50megs.com . Likely to be of special interest to you is a "School at the Hospital" Forum listed in the Forum section of the Home Page, detailing some issues surrounding aHUS kids. I'm proud of Maine native's Leslie Morissette's work with Gramtasics and posted her program there for other parents - Leslie provides laptops to the child and a webcam to the child's classroom so that hospitalized kids can stay academically and socially connected. How great is that?!! Again, a warm welcome to the site!
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "About aHUS" tab at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
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