St. Louis Meetup
Ballpark Village Hilton
I have to admit to…Continue
Posted on June 14, 2015 at 3:30pm — 3 Comments
Hi all, today I wanted to share with you something that has been popping on via the fb closed page. It seems many people are having severe migraine headaches which they are attributing to Soliris, since it is a noted, common side effect. That may be the case, but please report these to your One Source Nurses.
One of the things that is made clear by following the discussion threads over several months is that the timing between the headaches and the infusions are all over…Continue
Posted on April 24, 2015 at 1:02pm
I want to take a moment to encourage everyone to make at least one aHUS Meet Up this year...now, it's early in the year, all involved have worked hard to make these events affordable, educational and a place for a tremendous outpouring of support.
Even if, like us, you battled years alone, you got this, ect. you deserve this opportunity. People used to tell us, "Take a break.", "Get a manicure.", "Go out to eat, we'll watch the kids." , "Get out of that hospital for…Continue
Posted on April 8, 2015 at 2:51pm — 1 Comment
Posted on December 2, 2014 at 11:07am
Posted on October 18, 2014 at 11:40am