NORD is hosting a free aHUS regional meeting in Chicago on Sept 19th - great chance to meet other aHUS families and listen to a physician give a medical presentation about aHUS.
Friday Welcome Dinner, with a Saturday offering of info & support - it's a free event plus a small travel stipend, meals, and hotel room provided for Friday night. I'll be there, and can't wait to meet you!
Welcome, we hope you find this site to be a source of information and support. It's both amazing to hear that your 5 year old son was diagnosed just recently and received Soliris just 3 days into his hospitalization.
We look forward to your participation on this site.