The Atypical HUS Foundation

Chrissy
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Chrissy's Page

Profile Information

Do you have a friend or family member diagnosed with aHUS?
Immediate Family
I am a caregiver for an aHUS patient
Yes: for a pediatric aHUS patient
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
My membership request involves business interests as I seek additional aHUS information for business applications.
no
My child ( or myself as a patient) is best described as:
Interested in Undergoing Genetic Testing, Tested but Awaiting Results

Comment Wall (3 comments)

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At 5:23pm on February 16, 2016, Kim Stapleton said…

Chrissy, I live in Downers Grove, IL and would love to chat. Feel free to call me when you can. My home # is: 630.964.4482. My daughter is 2.

At 11:24am on July 28, 2015, Linda Burke said…

Hi Chrissy,

NORD is hosting a free aHUS regional meeting in Chicago on Sept 19th - great chance to meet other aHUS families and listen to a physician give a medical presentation about aHUS.  

Friday Welcome Dinner, with a Saturday offering of info & support - it's a free event plus a small travel stipend, meals, and hotel room provided for Friday night.  I'll be there, and can't wait to meet you!

Registration links and more info from NORD is in our Events forum at http://atypicalhus.ning.com/events/nord-hosts-2015-ahus-regional-meetings 

At 11:42pm on July 21, 2015, Linda Burke said…

Welcome, we hope you find this site to be a source of information and support.  It's both amazing to hear that your 5 year old son was diagnosed just recently and received Soliris just 3 days into his hospitalization.

We look forward to your participation on this site.

 
 
 

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