The Atypical HUS Foundation

Ethan Ardoin
  • Male
  • Oklahoma City, OK
  • United States
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Ethan Ardoin's Friends

  • Jonathan Aguallo
  • maria vicenta carratala rios
  • Destiny Floyd-Rakes
  • Kathy Yates
  • Cassie
  • Cheryl Biermann
  • Donna Kolp
  • Svetlana Finley
  • Heather Still
 

Ethan Ardoin's Page

Profile Information

Birthday
January 11
Do you have a friend or family member diagnosed with aHUS?
Yes
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
My membership request involves business interests as I seek additional aHUS information for business applications.
no
My child ( or myself as a patient) is best described as:
Factor H (CFH) /Protein (Gene)

Ethan Ardoin's Photos

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Ethan Ardoin's Blog

Ethan Ardoin

Ethan is very busy playing, but he's given me the "go ahead" to tell his story.



Flu-like symptoms appeared when Ethan was 7 months old. His pediatrician sent us directly to OU Children's Hospital after lab values showed critical anemia. Following six weeks in the hospital he was diagnosed with Atypical (ttp) HUS and was sent home on peritoneal dialysis. With a dialysis machine the size of a refrigerator and a 14 hour therapy, we moved his crib into our living room so he could… Continue

Posted on June 18, 2009 at 9:00pm — 4 Comments

Comment Wall (5 comments)

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At 12:09pm on September 24, 2010, Cheryl Biermann said…
Hi!

Just to let you know, my access to the internet is limited now, but if you want to reach me, you may contact me through my husband's send a message. He is Bill Biermann.
At 10:35pm on March 1, 2010, Linda Burke said…
Just a note to say hello and see how things are going for y'all. Best wishes, Linda Burke
At 9:23am on July 9, 2009, Phyllis Ann Talbot said…
Hi Christie - thanks for the info - yeah - we've gone straight to the emergency room and had labs immediately following both times and they have been 'normal' (or as normal as ours ever are! ;-) We normally have labs once a mth and had does have a port and lidocaine - but all his electrolytes, calcium, K, and phos seem pretty stable. Both of his seizures have seemed like textbook febrile seizures - how unlucky can the poor kid get! Still seems like a little too much of a coincidence to me - but we'll see what the neurologist says - when we see them in 2 mths!! ughh! Anyway - thanks for the info...
At 9:39pm on June 18, 2009, Linda Burke said…
Thanks for adding your story to the website - all those trials and Ethan still has that great smile in the Kamp Kidney photo! He must be quite a remarkable young man, and who seems blessed with a very supportive family. We applaud your family's positive attitude and while we personally can't "find a cure", this parent group is gathering strength in numbers as we endeavor to increase contact opportunities with researchers and medical personnel interested in helping the aHUS community find answers to this complex disease. Feel free to post information (maybe the transplant forum?) and add comments/questions as you see fit. ps Love the pony photo! Linda
At 8:25pm on June 17, 2009, Linda Burke said…
Hi Ethan! Welcome to the new interactive website for aHUS families and friends - we hope you find it full of information and support. That's a pretty remarkable trophy in the photo you posted - WOW. We'll be looking forward to hearing your story!
 
 
 

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