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Christine Boyer
- Female
- Saint Louis, MO
- United States
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Christine Boyer's Page
Latest Activity
Profile Information
- Birthday
- January 15
- Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
- Yes
Comment Wall (3 comments)
- At 8:33am on March 23, 2010,
Cheryl Biermann said…
- Hi Chrissy, thanks for all your help with the trivia night, one day Nathan is going to be floored at the support of his family and friends and feel so blessed to have been a part of something so big! Im going out to use my Scnucks card today! It was a stroke of genius-I don't know why I never thought of it, I guess because all the schools are doing it I didn't even look into it-DUH. Bill said you had a pretty good response to the cards, that's great! Give Alexis a hug from us, I can't wait till the family has a get to gether and we get to see all our nieces and nephews kids! Tell Dave I hope his toes get better quick!
- At 9:57am on March 1, 2010,
Cheryl Biermann said…
- Hi Chrissy, Great to see you here, thanks for getting back to me and letting us know it was you! Yes, this is a good way to track our progress and get to know some of the other kiddos. Feel free to read or maybe you'd even like to help me with my fundraising forum, because you've held some on your own, independent of the trivia...just email me your suggestions. Thanks!
- At 11:39am on February 28, 2010,
Linda Burke said…
- Welcome to the interactive website of the Foundation for Children with Atypical HUS. I see that you're from Saint Louis, so perhaps you know the Biermann family, who do so much for the aHUS community.
We're looking forward to your participation on this site- thanks for joining!
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "About aHUS" tab at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
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