The Atypical HUS Foundation

Cristian Arias
  • Male
  • La Puente, CA
  • United States
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Cristian Arias's Discussions

Soliris and excruciating leg pain

Hello everyone , this is my first time posting and I'm looking for some answers, suggestions or maybe just comfort. I want to start off by apologizing , I don't know all the correct terms and might…Continue

Started Sep 27, 2016

 

Cristian Arias's Page

Profile Information

Birthday
October 26
Do you have a friend or family member diagnosed with aHUS?
Immediate Family
I am a caregiver for an aHUS patient
Yes: for an adult with aHUS
I am an adult aHUS patient.
No
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
I have attended a meeting or conference to learn about aHUS.
NORD aHUS Regional Meeting, Global Genes Meetup
My membership request involves business interests as I seek additional aHUS information for business applications.
No, looking to learn and here from others suffering from the disease
My child ( or myself as a patient) is best described as:
Not Tested, Interested in Undergoing Genetic Testing

Comment Wall (1 comment)

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Join The Atypical HUS Foundation

At 9:13am on July 19, 2016, Linda Burke said…

Welcome, we hope you find this site to be a source of information and support.

 Please check out our aHUS resource list.  You may want to review the aHUS Bootcamp as a starting point, to get an overview of aHUS.  We look forward to your participation on this site.

 

 
 
 

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