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Dallas
- Male
- Placerville, CA
- United States
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Dallas's Page
Latest Activity
Amy Swarbrick left a comment for Dallas"That is awesome, I was hoping I knew you! I am so glad you joined. Wow, how nice of you to take the time to look something like this up. The more people who can bring awarness about this disease the better. We also have a family blog at…"
Dallas left a comment for Amy Swarbrick"Amy, this is Dallas from the softball tournament. I joined this to learn more about Atypical HUS. Our 20-30 Club meets tonight and we will have final numbers from Swing for Brody. I will call Chris so we can set up a time to get together."
Amy Swarbrick left a comment for Dallas"Do we know eachother? I see that you live in Placerville. Just wondering what brought you to this site?"
Cheryl Biermann left a comment for Dallas"Welcome! We hope this site as well as the other one gives you some answers and maybe some comfort as well. We look forward to getting to know you."
Linda Burke left a comment for Dallas"Hi Dallas,
Welcome to the interactive website for The Foundation for Children with aHUS. Since your profile indicates aHUS may be a new topic for you, you might want to check out the tab marked "About aHUS" or visit the Foundation's…"
Profile Information
- Birthday
- January 29
- Do you have a friend or family member diagnosed with aHUS?
- No
- Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
- No
- My child ( or myself as a patient) is best described as:
- Question Does Not Apply To My Situation
Comment Wall (4 comments)
- At 10:50pm on October 7, 2009, Amy Swarbrick said…
- That is awesome, I was hoping I knew you! I am so glad you joined. Wow, how nice of you to take the time to look something like this up. The more people who can bring awarness about this disease the better. We also have a family blog at http://www.littleswarbrickfamily.blogspot.com/. You can also contact me directly at 530-919-6716 or amy_881@yahoo.com. Hope all is well with you and maybe we will see you soon:) Thanks again for everything. The softball tournament was amazing. So many caring people. One day we will tell Brody all about it!
- At 2:01am on October 7, 2009, Amy Swarbrick said…
- Do we know eachother? I see that you live in Placerville. Just wondering what brought you to this site?
- At 6:22pm on September 23, 2009, Cheryl Biermann said…
- Welcome! We hope this site as well as the other one gives you some answers and maybe some comfort as well. We look forward to getting to know you.
- At 11:14pm on September 21, 2009, Linda Burke said…
- Hi Dallas,
Welcome to the interactive website for The Foundation for Children with aHUS. Since your profile indicates aHUS may be a new topic for you, you might want to check out the tab marked "About aHUS" or visit the Foundation's interactive website at www.atypicalhus.50megs.com . We look forward to hearing about your situation and interest in aHUS.
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
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