Two weeks ago about 30 of us gathered on the MIT campus in Cambridge, MA for the Global Genes meetup. It was my third meeting in three years, but my first local one. I was thrilled to present as a Patient Advocate on behalf of the Foundation. My husband and I were there for our son, Jack, who presented eight years ago at age 13 (he did not attend).
This was a first time event for many attendees.The majority of attendees were patients themselves, and all adults at time of diagnosis.…Continue
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