The Atypical HUS Foundation

Debbie Griggs
  • Female
  • Ashburnham, MA
  • United States
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Debbie Griggs's Page

Latest Activity

Debbie Griggs replied to Tricia's discussion To test or not to test?
"One other thought (funny how you always get that after you press the send button). If you did have your children tested, and 1 came back positive, how would that make you feel and would you treat that 1 differently. Maybe that 1 would get better…"
Apr 28, 2016
Debbie Griggs replied to Tricia's discussion To test or not to test?
"My brother was diagnosed late last year and I have a 50% chance of having the same mutation. I've been giving a lot of thought to the question of being tested myself. If it comes back negative, that would be great, but if I had the same…"
Apr 28, 2016
Debbie Griggs commented on Debbie Griggs's photo
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"Photo shows me (in the middle), my husband on the right and my brother who has aHUS on the left."
Apr 27, 2016
Debbie Griggs is attending Linda Burke's event
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aHUS Family Conference - IOWA at U of Iowa campus, and Iowa City Sheraton Hotel

November 4, 2016 at 12pm to November 6, 2016 at 12pm
The Atypical HUS Foundation is pleased to announce that the aHUS Family Conference, in conjunction with The University of Iowa, will be held in Iowa City, Iowa on November 4-6, 2016 at the Sheraton Iowa City Hotel.Usually held every 2 years, the aHUS Family conference is the only aHUS patient-centered meeting with multiple medical presentations by aHUS experts on topics of diagnosis, treatment, genetics, and more. Registration is limited, FMI see details at the Eventbrite registration site: …See More
Apr 26, 2016
Debbie Griggs left a comment for Linda Burke
"Hi Linda, I'll chat to my husband tonight about Iowa, I would very much like to attend so let me get back to you on that! Thank you for the welcome Cheers Deb"
Apr 26, 2016
Debbie Griggs posted a photo
Apr 26, 2016
Linda Burke left a comment for Debbie Griggs
"Welcome, we hope you find this site to be a source of information and support.  Please check out our aHUS informational resources."
Apr 26, 2016
Debbie Griggs is now a member of The Atypical HUS Foundation
Apr 26, 2016

Profile Information

Birthday
January 21
Do you have a friend or family member diagnosed with aHUS?
Immediate Family
I am a caregiver for an aHUS patient
No
I am an adult aHUS patient.
No
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
My membership request involves business interests as I seek additional aHUS information for business applications.
Personal reasons, my brother has aHUS
My child ( or myself as a patient) is best described as:
Not Tested

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At 4:21pm on April 26, 2016, Linda Burke said…

Welcome, we hope you find this site to be a source of information and support.  Please check out our aHUS informational resources.

 
 
 

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