The Atypical HUS Foundation

Delyana Sabeva Yordanova
  • Female
  • Sofia
  • Bulgaria
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Delyana Sabeva Yordanova's Friends

  • Nicolas
 

Delyana Sabeva Yordanova's Page

Profile Information

Birthday
March 14
Do you have a friend or family member diagnosed with aHUS?
Immediate Family
I am a caregiver for an aHUS patient
Yes: for a pediatric aHUS patient
I am an adult aHUS patient.
No
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
My membership request involves business interests as I seek additional aHUS information for business applications.
no
My child ( or myself as a patient) is best described as:
Factor H (CFH) /Protein (Gene)

Comment Wall (2 comments)

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At 4:02am on July 26, 2015, Nicolas said…

Hello,

The hospital Robert Debré is where exercises of the best world experts, Professor LOIRAT. This child is in one of the best Hospitals which deals with aHUS.
It's a great thing that supported France. We also have one of the best laboratories conducting research on HUS.
How will organize your return to Bulgaria?
I live in France and knows well this hospital.

At 11:26pm on July 21, 2015, Linda Burke said…

Welcome.  I am glad to hear that your baby girl is doing well on Soliris now, after having been sent to France from the Fund for Treatment of Children in Bulgaria. What a wonderful opportunity, one sure to have been made possible by much advocacy and by many people.

We hope you find this site to be a source of information and support.

 
 
 

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