Desiree L Mayne's Page

MY STORY.........................
I was pregnant with my 3rd baby girl. I had been having troubles with my blood pressure and protien in my urine for the last couple months of my preganacy. I went in for an appoinment and they said come back at 6 so we can start an induction. They induced me for sevral days. End result on December 18th I had a c section. I stayed in the hospitl the average couple of days, then they sent me home. Having my first 2 children natural, I wasn't sure how I should be feeling. I spent the first night home feeling thirsty, and very tired. The second night I was home I started getting a really bad bloody nose. I called the Doctor. He said to come to hospital ar 8 AM. By the time I got there I could not walk through the doors. My platlet count was under 40,000. They came running in with IV's and blood. I was fighting for my life. I was then diagnosed with post pardum HUS/TTP. I was air lifted to a larger hospital and spent christmas and new years there. I was there for an entire month, under going dialysis and plasma pherisis......atleast twice a day. I was in PA and my children and family were in NY. I saw each of my children 1 time in a month. It was the hardest thing I ever had to do, my children are my life! After returning home, in full renal failure, I was set up for dialalysis in 2 days. Sruggling to breath those 2 days, I went to my first outpatient dialysis treatment. There, while on the hemodialysis machine a had a seasure. I also had 2 more on the way to the hospital and in the er. I was admitted for another 2 week stay. Finding out that I also had cardiomyopathy! When I was finally released it all became a routine, for 3 yrs. Dialysis 3 times a week for 4 hours. Then out of the blue a call came from the transplant team in Syracuse NY. They had a kidney for me. I was transplanted on November 23rd 2004. I now take a ton of meds and spend some time in and out of the hospital. It is all worh it. I would hate to be on dialysis again. It is inpiring to see all of your children fighting this horrible sydrome. having been through it, I feel for them. I admire thier stregth and courage. My nephew Ryan Still and I share the same blood mutations, I have not had a relapse of the HUS. I hope that this may be a sign that there is something that can be done to beat this thing. If anyone has any questions about what your children are going through please feel free to ask. Maybe I can give you an adult answer that your children can't.