The Atypical HUS Foundation

Emily Wiebke
  • Female
  • Mason City, IA
  • United States
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  • Linda Burke

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Profile Information

June 5
Do you have a friend or family member diagnosed with aHUS?
I am an adult aHUS patient.
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
My membership request involves business interests as I seek additional aHUS information for business applications.
My child ( or myself as a patient) is best described as:
Tested but Awaiting Results

Comment Wall (3 comments)

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At 1:48pm on July 28, 2014, Linda Burke said…

Just checking in to see how things are going - sending best wishes, Linda

At 7:25pm on July 21, 2014, Cheryl Biermann said…
Welcome Emily,

I see your daughter is being treated with the cutting edge treatment so hopefully things get better for her soon. Please to.participate in this site any way that seems fitting.
At 8:55am on July 21, 2014, Linda Burke said…

Welcome to the website Emily,

I'm so sorry that your daughter is now in PICU but beginning on Soliris yesterday is a step in the right direction - as are your steps in contacting Iowa for a 2nd opinion and for genetic screening.

If you haven't yet read the aHUS Bootcamp, to get an overview of this disease, please check out that resource and many others in our tab 'aHUS Materials and Info" and feel free to post comments and questions.  




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