The Atypical HUS Foundation

Erin Schooley
  • Amelia, OH
  • United States
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Erin Schooley's Discussions

Cellcept to Eliminate Factor H...
2 Replies

My two year old daughter was diagnosed in May with aHUS. She responded beautifully to Soliris and continues to do well. Her doctor has suggested using Cellcept to try to eliminate the Factor H auto…Continue

Started this discussion. Last reply by Erin Schooley Jul 14.

 

Erin Schooley's Page

Profile Information

Birthday
July 7
Do you have a friend or family member diagnosed with aHUS?
Immediate Family
I am a caregiver for an aHUS patient
Yes: for a pediatric aHUS patient
I am an adult aHUS patient.
No
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
My membership request involves business interests as I seek additional aHUS information for business applications.
No
My child ( or myself as a patient) is best described as:
Factor H (CFH) /Protein (Gene)

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At 12:23am on October 14, 2016, Linda Burke said…

Welcome, we hope you find this site to be a source of information and support.

 Please check out our aHUS resource list.  You may want to review the aHUS Bootcamp as a starting point, to get an overview of aHUS.  We look forward to your participation on this site.

 
 
 

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