Good to hear that your grandson is doing better and is now off dialysis. Hooray for your grandson's care team with a quick diagnosis , happy to hear about the Soliris and returning kidney function!
If you haven't yet read the tab 'aHUS Bootcamp', I'd recommend that as a starting point. There is the NIH medical overview, videos of aHUS medical experts, and more listed on our summary of aHUS Materials & Info at http://atypicalhus.ning.com/page/ahus-brochure-3 .
We look forward to your participation in this community.