The Atypical HUS Foundation

Gail Nielsen
  • Female
  • New Fairfield, CT
  • United States
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  • Linda Burke

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Profile Information

May 12
Do you have a friend or family member diagnosed with aHUS?
I am an adult aHUS patient.
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
I have attended a meeting or conference to learn about aHUS.
NO - but I'd like to attend a future meeting.
My membership request involves business interests as I seek additional aHUS information for business applications.
No, I am not interested in business applications
My child ( or myself as a patient) is best described as:
Tested but Results are Inconclusive

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At 10:07pm on August 24, 2014, Linda Burke said…

Welcome Gail,

Good to hear that your grandson is doing better and is now off dialysis.  Hooray for your grandson's care team with a quick diagnosis , happy to hear about the Soliris and returning kidney function!

If you haven't yet read the tab 'aHUS Bootcamp', I'd recommend that as a starting point. There is the NIH medical overview, videos of aHUS medical experts, and more listed on our summary of aHUS Materials & Info at .

We look forward to your participation in this community.




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