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Jaime Lauck
- Female
- Ballwin, MO
- United States
- Blog Posts (1)
- Discussions (1)
- Events
- Photos
- Photo Albums
- Videos
Jaime Lauck's Page
Latest Activity
"Hi Jaime, Thanks for the full introduction. I'm glad your'e managing without dialysis, but I'm sorry it's been a rough year for you. Hopefully things will just get better. I'm 29, too, and have been struggling with the…"
Kathy Yates commented on Jaime Lauck's blog post A New Hope (sorry Star Wars but it was appropriate)"There is hope, just don't give up! Our daughter, Brandi was transplanted in June,07, lost that transplanted kidney in July,09. It took losing the transplanted kidney to learn that she had AtypicalHUS. If they had known she had this disease she…"
Cheryl Biermann commented on Jaime Lauck's blog post A New Hope (sorry Star Wars but it was appropriate)"Way to tell it sister! In case your nephrologists haven't tried the "aHUS insurance templates" used by others on this site, please let us know. Using a successful format may help speed things up, but it does take…"
Jaime Lauck posted a blog postA New Hope (sorry Star Wars but it was appropriate)
I am 29 years old and diagnosed with aHUS two years ago. It was scary for me because I had never seen a hospital bed before that - except when I was born. After recieving LOTS of plasma pheresis and some dialysis, I got better and even though things weren't perfect, they were good enough to not have treatments and lead a somewhat normal life. I did have to take blood pressure medicine but other than that, nothing was all that bad. Well, this past February, I had my second relapse, underwent…See More
Jaime Lauck is attending Bill Biermann's event2011 Parent Conference at University of Iowa
October 7, 2011 at 6pm to October 9, 2011 at 7pm
SAVE THE DATE:The University of Iowa has graciously volunteered to host the 3rd "Atypical HUS Parent Conference" . This is a great way to meet the top medical Professionals while socializing with parents at the same time. Here are the specifics:Friday, Oct 7th Early Arrival 7:00pm Meet and Greet Dinner sponsored by the FoundationSaturday, Oct 8th The Confererence at the University of Iowa: (All Meals Provided)Sunday, Oct 9th …See More
"Hi Jaime, and welcome. It looks like you're an adult patient. Me, too. This is a great community."
Linda Burke left a comment for Jaime Lauck"Love the profile pic! (Of course, that gives me the opportunity to boast that Skyler just got his yellow belt this month and is the proud recipient of a new stripe already.) I read your comment about Soliris, so feel free to post any…"
Jaime Lauck commented on Amy Swarbrick's blog post Brody"Hello, Amy,
It is unknown what caused my initial cause of the disease - I was never really sick or had a virus or infection of any kind. I relapse only occasionally - I just had my first one in two years. …"
Jaime Lauck replied to Christy's discussion Recipes"Hello! I have sodium issues as well. As far as fries go - it's very easy to make your own. What I do is peel the potatoes, cut them, coat them with olive oil and a mrs dash seasoning he would like - I've always like…"
Jaime Lauck left a comment for Cheryl Biermann"Thanks for the post. Even though I was only diagnosed two years ago, I have done a lot of research and asked a lot of questions to my doctors. I have some very good doctors looking after me - they are very proactive. I am hoping to…"
Cheryl Biermann left a comment for Jaime Lauck"Hi, Jaime,
I went to this site before checking my emails, so I just want to welcome you here and mention an other option which you may not notice right away is that if you would like to leave a private message with someone, you can do that, but…"
Profile Information
- Birthday
- September 9
- Do you have a friend or family member diagnosed with aHUS?
- Yes
- Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
- Yes
- My membership request involves business interests as I seek additional aHUS information for business applications.
- research
- My child ( or myself as a patient) is best described as:
- C3 (C3)
Jaime Lauck's Blog
A New Hope (sorry Star Wars but it was appropriate)
I am 29 years old and diagnosed with aHUS two years ago. It was scary for me because I had never seen a hospital bed before that - except when I was born. After recieving LOTS of plasma pheresis and some dialysis, I got better and even though things weren't perfect, they were good enough to not have treatments and lead a somewhat normal life. I did have to take blood pressure medicine but other than that, nothing was all that bad. Well, this past February, I had my second relapse,…
ContinuePosted on June 16, 2011 at 10:41pm — 3 Comments
Comment Wall (5 comments)
- At 7:41am on April 6, 2011,
Grace said…
- Hi Jaime, and welcome. It looks like you're an adult patient. Me, too. This is a great community.
- At 11:31pm on March 22, 2011, Linda Burke said…
- Love the profile pic! (Of course, that gives me the opportunity to boast that Skyler just got his yellow belt this month and is the proud recipient of a new stripe already.) I read your comment about Soliris, so feel free to post any questions you may have- a few people on this site have used it for more than a year.
- At 1:02pm on March 19, 2011, Cheryl Biermann said…
Hi, Jaime,
I went to this site before checking my emails, so I just want to welcome you here and mention an other option which you may not notice right away is that if you would like to leave a private message with someone, you can do that, but first you must either request to be their friend or accept a friend requesct. As I said in my email to you it can be overwhelming, all of this information, so please don't hesitate to call. We always carve time out when someone needs to talk.
- At 12:32pm on March 19, 2011, Cheryl Biermann said…
Hi Jaime,
Welcome to our site, it will be intersting to have another adult on the site, although, I can't say it is good you have to suffer. Feel free to add your comments and blog if you would like, as you can see we do have other adults here and their experiences range from long-time patients to newly diagnosed. I'm sure what you have to say will be of interest to everyone.
Nice to have you aboard.
Cheryl.
- At 10:55pm on March 18, 2011, Linda Burke said…
Hi Jaime,
As a newly diagnosed adult with aHUS, you might have a few questions for other adult-onset aHUS patients so feel free to post comments or a blog on the home page. Hope this site provides you with both information and support.
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
************************
NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
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