The Atypical HUS Foundation

Jeff Schmidt
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  • Royersford, PA
  • United States
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Profile Information

December 7
Do you have a friend or family member diagnosed with aHUS?
I am an adult aHUS patient.
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
I have attended a meeting or conference to learn about aHUS.
NORD aHUS Regional Meeting, 2014 aHUS Family Conference in Iowa
My membership request involves business interests as I seek additional aHUS information for business applications.
My child ( or myself as a patient) is best described as:
Factor H (CFH) /Protein (Gene)

Jeff Schmidt's Blog

aHUS Alliance Global Video Project for Rare Disease Day, February 28, 2017

Rare Disease Day is right around the corner.  The world will join together on February 28, 2017 to raise awareness for rare diseases.  The theme for the upcoming Rare Disease Day is “Research”.   



Posted on December 26, 2016 at 5:47pm

aHUS Alliance Global Video Project for aHUS Awareness Day, September 24, 2016

(Updated August 9, 2016 - new coloring page added)

The second annual aHUS Awareness Day is coming up fast.  The world will join together on September 24, 2016 to raise awareness for aHUS.  The global theme for aHUS Awareness Day this year is ‘Rise above aHUS’.   

The global aHUS Alliance (the umbrella organization of Atypical Hemolytic Uremic Syndrome Patient Organizations from around the…


Posted on August 3, 2016 at 3:00pm

Meet This Courageous Family Ready to Leave Their Country To Save Their Young Son with aHUS

Here is the story of an amazing and courageous family from India.  Deepika and Anil Jaiswal have a young son Aadhyan who has had aHUS since he was 1 year old.  He is now close to 6.  But what’s different for Aadhyan, is that unlike those in the United States (and…


Posted on June 21, 2016 at 7:07pm

Shocking!!! Just 6 Months of Soliris for Our Friends in Ontario, Canada on Dialysis!!! Use Your Facebook Skills to Help!

Recently, Health Minister Dr. Eric Hoskins of Ontario, Canada announced that Soliris would finally be made available to those on dialysis and in need of a kidney transplant.  This would be good news except that these patients will get a maximum of 6 months of…


Posted on May 25, 2016 at 7:54pm — 3 Comments

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At 8:24am on October 29, 2014, Phyllis Ann Talbot said…

ha ha ha!  Welcome stranger ;-)

At 6:41am on October 29, 2014, Phyllis Ann Talbot said…

Hey Jeff!  How were you not on here before?!?!?! ;-)

At 10:17pm on October 28, 2014, Linda Burke said…

Welcome, friend - so glad to see you here!




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