Rare Disease Day is right around the corner. The world will join together on February 28, 2017 to raise awareness for rare diseases. The theme for the upcoming Rare Disease Day is “Research”.
Posted on December 26, 2016 at 5:47pm
(Updated August 9, 2016 - new coloring page added)
The second annual aHUS Awareness Day is coming up fast. The world will join together on September 24, 2016 to raise awareness for aHUS. The global theme for aHUS Awareness Day this year is ‘Rise above aHUS’.
The global aHUS Alliance (the umbrella organization of Atypical Hemolytic Uremic Syndrome Patient Organizations from around the…Continue
Posted on August 3, 2016 at 3:00pm
Here is the story of an amazing and courageous family from India. Deepika and Anil Jaiswal have a young son Aadhyan who has had aHUS since he was 1 year old. He is now close to 6. But what’s different for Aadhyan, is that unlike those in the United States (and…
Posted on June 21, 2016 at 7:07pm
Recently, Health Minister Dr. Eric Hoskins of Ontario, Canada announced that Soliris would finally be made available to those on dialysis and in need of a kidney transplant. This would be good news except that these patients will get a maximum of 6 months of…Continue
Posted on May 25, 2016 at 7:54pm — 3 Comments