So, I haven’t updated for a long time—basically because everything has been rock solid. Coen has been on Soliris for nearly 2.5 years. I can’t believe it has been that long already. The disease continues to be in remission and he is thriving. Kidney function has not improved or declined during that time. Creatinine still sits at 1.6 consistently. We just changed insurance company’s for the 4th time since the start of Soliris and luckily, once again it got approved without a…Continue
Posted on July 13, 2011 at 12:25pm — 4 Comments
Coen, almost 8, is very excited for Christmas. He is counting down! We are busy planning for our annual Christmas Eve party--which entails lots of food, tons of people, free-flowing wine, rockband on wii--and always a very special visit from Santa. As I think about it, it is funny how traditions come about.
It was December 15, 7 years ago, when Coen was rushed to the hospital and diagnosed with aHUS. I always remember the date because I remember being totally ignorant and…Continue
Posted on December 12, 2010 at 12:12am — 3 Comments
Posted on December 28, 2009 at 4:33pm — 7 Comments
Posted on November 16, 2009 at 10:56pm — 13 Comments
Posted on October 28, 2009 at 10:11am — 17 Comments