As you will have seen already, you are not alone. You've already heard from my colleague Len Woodward. Len is treasurer and I am secretary of aHUSUK, a registered charity recently set up to support people with aHUS and their families in UK. Our members either have the disease, or like Len and me, have close family with it. Among other things, the charity is heavily involved in campaigning for central funding both for eculizumab and a national research and treatment centre for aHUS in Newcastle. If you would like to know more about what we are doing please have a look at our website. www.ahusuk,org. If you would like to join us please contact me via the website.
We are looking forward to an update about the efforts of the UK aHUS community, with hopes of progress in your efforts to provide broader access to those UK patients wishing to utilize Soliris therapy for aHUS.