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Joseph J Krug MD
- Male
- Knoxville, IL
- United States
- Blog Posts (1)
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Joseph J Krug MD's Page
Latest Activity
Kathy Jo Matlock left a comment for Joseph J Krug MD"Dr. Krug, I am new to this site. I noticed that you live, or at least used to live in IL. My husband and I live in central IL. Our grand daughter was diagnosed with aHUS in April of 2011 when she was 6 1/2 months old. She has had one other episode…"
Joseph J Krug MD left a comment for Linda Burke"Linda,
Kelley is doing great! His Creatinine is now 0.7 and we are hopeful that with continued Soliris it will encourage even more recovery. Dr Nester is very pleased. It is a much better spring for us than one year ago....
jeff"
Linda Burke left a comment for Joseph J Krug MD"Hi Jeff,
Hope Kelley is doing well - has he continued to see improvements? Skyler has been doing well after discontinuing Soliris about 10 months ago, though I must admit to some mixed labs when strep and viruses went around the 1st…"
Joseph J Krug MD commented on lisa ann peterson's blog post Lil miss Chloe P"Lisa,
Chiari One malformation is the mildest, and is usually not associated with any symptoms. Chiari One is usually found only incidentally, and is a minor variation which usually requires no treatment or intervention. It is…"
Joseph J Krug MD commented on Jessica Olivia Frysz's blog post Christmas time is here...."Merry Christmas Jessica,
I hope everything works out well for you and that your new year is bright, happy, and healthy!!"
Joseph J Krug MD commented on Stacey's blog post Riley's success"Merry, Merry Christmas.
God be with your family and your son!!!!!!"
Joseph J Krug MD commented on maria vicenta carratala rios's blog post No Title"Merry Christmas,
My Family and I share in your joy!!"
Joseph J Krug MD commented on Destiny Floyd-Rakes's blog post Weekly plasma exchange."We haven't had a biopsy since the Soliris was started, but Kelley's activated complement c5 level (an indication of active AHUS activity, which is only done at Mayo's) has consistantly been low. Because soliris is an…"
Joseph J Krug MD commented on Destiny Floyd-Rakes's blog post Weekly plasma exchange."Kelley was on plasma exchange for 4 months without any improvement in his condition. He is on Soliris now and his labs have returned to normal! There are no reports of Soliris NOT working for AHUS since it blocks what causes the…"
Linda Burke commented on Joseph J Krug MD's blog post Update on Kelley"So nice to see your happy update! In addition to having Joey for an incredible brother, and having great care at the U of Iowa, Kelley has been blessed by your supportive love and perseverance through the twisting maze of his aHUS journey. The…"
Svetlana Finley commented on Joseph J Krug MD's blog post Update on Kelley"That is great news!! We are glad to hear he is doing very well!!"
Cheryl Biermann commented on Joseph J Krug MD's blog post Update on Kelley"Hi!
What a tremendous relief to hear from you! Our prayers will continue. We look forward to hearing more good news as the moths slip by."
Joseph J Krug MD commented on lisa ann peterson's blog post update on lil miss chloe"Lisa,
Many times I have prayed that God would take me and spare my child this trial. Please have faith, hold on, and know you are not alone. This nightmare will end. I've watched my child suffer and hover near death, and recover. Children are…"
Joseph J Krug MD posted a blog postUpdate on Kelley
Hi,Kelley will turn 11 on Nov 20! He has been on Soliris since July!! His parameters continue to improve and he is growing and even gaining a little weight. Without your help Linda, we would never be at this point. This site is the only place where real, practical, useful information is available. Our family is greatful for the blessings we have received. Thanks for all of your prayers, you are all in ours.jeffa dad, a doc, an AHUS child's parent.......See More
Profile Information
- Birthday
- March 30
- Do you have a friend or family member diagnosed with aHUS?
- Yes
- Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
- Yes
- My child ( or myself as a patient) is best described as:
- Tested but Awaiting Results, Tested but Results are Inconclusive
Joseph J Krug MD's Blog
Update on Kelley
Hi,
Kelley will turn 11 on Nov 20! He has been on Soliris since July!! His parameters continue to improve and he is growing and even gaining a little weight. Without your help Linda, we would never be at this point. This site is the only place where real, practical, useful information is available. Our family is greatful for the blessings we have received. Thanks for all of your prayers, you are all in ours.
jeff
a dad, a doc, an AHUS child's…
ContinuePosted on November 1, 2010 at 6:16am — 3 Comments
Comment Wall (4 comments)
- At 7:54pm on April 3, 2012, Kathy Jo Matlock said…
Dr. Krug, I am new to this site. I noticed that you live, or at least used to live in IL. My husband and I live in central IL. Our grand daughter was diagnosed with aHUS in April of 2011 when she was 6 1/2 months old. She has had one other episode at 13 months. Both times she regained all of her kidney function but remains on blood pressure meds. From what I read on your blog it looks as though your son is doing well. Just thought I'd reach out to a few people who are going through what will most likely be our family's journey. God bless you. Our little Izzy is so precious to us and if I can learn even one thing, I want to do that. We have several health issues in our family - Lynch syndrome, aHUS, Celiac, Lupus, HLA B27+ AS to name a few.
- At 12:29pm on April 10, 2011, Linda Burke said…
Hi Jeff,
Hope Kelley is doing well - has he continued to see improvements? Skyler has been doing well after discontinuing Soliris about 10 months ago, though I must admit to some mixed labs when strep and viruses went around the 1st grade classes this winter. Wishing you the best, Linda
- At 10:53am on May 24, 2010, Cheryl Biermann said…
- It is wonderful to have you here. I've read the comments from Joey, it is awesome that he has contacted us. My sons will look if I make them, but they want no part of joining the conversations!
- At 9:30am on May 23, 2010, Linda Burke said…
- Glad to see you here....hope that Kelley is doing better and that his hemolyzing and BP issues are under control. Joey has logged on to ask for prayers for his brother - you've got quite remarkable sons (I'm sure you hear that a lot)! Know that the aHUS online community is here to offer whatever information and support we can to your family.
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
************************
NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
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